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UC will NOT Stop Me!

Introduction:

Hi! My name’s Ruthe. I work in a hospital as a phlebotomist and have also just started nursing school. I’m addicted to running, which often means that I run from porta potty to porta potty! Regardless of what my gut does,I have to run…it’s a matter of staying SANE!
Whistle Lake Mile 8

Ruthe at Whistle Lake Mile 8

My UC Symptoms:
I’m currently going through the worst and longest flare since I was diagnosed- about 15 years ago. I’m perimenopausal and wonder if changing hormones could be exacerbating the Ulcerative Colitis..doc can’t answer that one for me! I’m tapering prednisone, down to 10 Mg, but have that “oh no” feeling. I also take balsalazide, which has been my go to drug for years, but now feels worthless! Currently. I have cramping, urgency, pain and some diarrhea. Not a lot of bleeding or mucus, but before the pred, it was horrendous!

My Story:

I have the most amazing husband who is kind and understanding throughout this whole bathroom adventure. He’s often sat in the bathroom with me an held my hand while I sat and cried…I’m lucky! But he is all I. Have. We’ve become estranged from my family because I have a daughter who is mentally ill and a drug addict …life is incredibility stressful! It would be wonderful to have their support but this is not to be…at least right now. I do have several good friends who work in health care and are not grossed out when I tell them to” find me a potty before I crape my pants!” I’m sure you all know how rare that is! I’ve made it a point to be more open about my problem in an attempt to reduce the stigma, I attempt the same thing with my daughter’s situation.
UC has only slowed me down …so far. I’ve run 3 marathon’s and 9 half marathon’s, but with this last flare I had to stop running due to the pain. For three weeks I rested and nearly went crazy. I actually cried with joy on my first run back! I’m afraid for the future, especially because I’m getting older. I seem to be handling stress less effectively, which is (maybe) why this flare has been so bad!? I’m also afraid because I don’t have insurance and cant get scoped. Doc is pushing to get one done, but he did 33 biopsies with the last one, and just the biopsies are 80. Bucks a pop! That doesn’t count the actual procedure or the pathology! Ouch! I’m a starving student! Tuition is huge and there’s not enough left for even important things. I told my doc that I’d go to the UW and offer my gut as a learning tool in exchange for a free colonoscopy…he was not amused ;-)

Where I’d Like to be in 1 year:

I’d like to be symptom free in year! I start the paleo diet Monday and have high hopes!
I’d like to be running pain free-at least gut pain free’
Colitis Medications:
I have loved balsalazide! I hope it works for me again! In school I’ve learned that its a prodrug – which is a med that is inert until activated. Balsalazide is inert until bacteria in your gut go to work on it. For this reason it is not systemic and, for me, causes very few side effects. Unlike prednisone, which makes me want to eat EVERYTHING and want to kill my sweet husband!!! Lol

written by Ruthe

submitted in the colitis venting area