I have the most amazing husband who is kind and understanding throughout this whole bathroom adventure. He’s often sat in the bathroom with me an held my hand while I sat and cried…I’m lucky! But he is all I. Have. We’ve become estranged from my family because I have a daughter who is mentally ill and a drug addict …life is incredibility stressful! It would be wonderful to have their support but this is not to be…at least right now. I do have several good friends who work in health care and are not grossed out when I tell them to” find me a potty before I crape my pants!” I’m sure you all know how rare that is! I’ve made it a point to be more open about my problem in an attempt to reduce the stigma, I attempt the same thing with my daughter’s situation.
UC has only slowed me down …so far. I’ve run 3 marathon’s and 9 half marathon’s, but with this last flare I had to stop running due to the pain. For three weeks I rested and nearly went crazy. I actually cried with joy on my first run back! I’m afraid for the future, especially because I’m getting older. I seem to be handling stress less effectively, which is (maybe) why this flare has been so bad!? I’m also afraid because I don’t have insurance and cant get scoped. Doc is pushing to get one done, but he did 33 biopsies with the last one, and just the biopsies are 80. Bucks a pop! That doesn’t count the actual procedure or the pathology! Ouch! I’m a starving student! Tuition is huge and there’s not enough left for even important things. I told my doc that I’d go to the UW and offer my gut as a learning tool in exchange for a free colonoscopy…he was not amused ;-)
Where I’d Like to be in 1 year:
I’d like to be running pain free-at least gut pain free’