I just turned 27 and was diagnosed with moderate to severe pancolitis in November of 2011. After my initial diagnoses I was in remission for 6 months. Since then I have had 3 flares and was just diagnosed with c diff for the third time in a year. This is my third time with oral Vancomycin. It always clears it up but then comes back about 4 months later. I am sick of this vicious cycle, so I looked into the fecal transplant. The Mayo clinic agreed to do my transplant next week! I am hoping this clears up the c diff once and for all. Also hoping it will help with my UC flares. I have been on the SCD diet for 3 months now and will continue the diet after my transplant.
Some more about me:
I enjoy being outdoors, shopping and gardening. I live in Minnesota and recently graduated with a doctorate in Audiology. I love my job!
Symptoms I’m Dealing With:
Cramping, diarrhea, gas
Colitis, C-Diff and Fecal Transplant
I was diagnosed with moderate to severe pancolitis when I was 25. It took 4 months to get a proper diagnosis. At first the doctor told me it was IBS. After waiting another 2 months I became very weak, thin and anemic. After my doctor realized how anemic I had become she sent me for a colonoscopy. I was immediately put on prednisone and Asacol following my diagnoses. I responded very well to the prednisone and was able to taper off quickly. I was in remission for 6 months until I was diagnosed with cdiff for the first time. I was on Vancomycin which cleared the c diff up but then 2 weeks later I started to flare. I was put on entocort wich cleared up the flare but then 2 weeks later the c diff was back! Needless to say this has been a vicsious cycle I have been dealing with.
After clearing up the c diff I started a flare again. After the third flare i decided to start the SCD diet. My GI doctor was insistent that diet had nothing to do with UC and I should eat whatever I want. I just have a hard time believing it. I think too many doctors focus on treating the symptoms of diseases rather than working on the root cause. So far the diet has really helped with the symptoms of UC but the recurrent c diff has made it difficult to truly see how we’ll the diet will work for me. I forgot to mention I found out i was pregnant during my last flare but miscarried at 5 weeks so it has been a rough few months. After the miscarriage I was diagnosed with c diff for the third time!! I am currently on Vancomycin again and will be having a fecal transplant via colonoscopy at the Mayo Clinic next week. I am really hoping for positive results!! I plan on continuing the SCD diet after the transplant. My husband and I are looking forward to starting a family so I really need to try and achieve remission!
Medications and Treatments I’ve Done/Doing:
Asacol-4 pills 2x day (not sure if it really helps)
Vancomycin 2.5 ml 4x per day for C-diff
Prednisone- Used for my first flare
Entrocort- used for the last two flares and worked well
written by Sara
submitted in the colitis venting area