Tuesday to Thursday… I Got This

Hi all,

I am recently diagnosed with UC. Like really recent it’s Thursday(1/19/2012) and I was diagnosed on Tuesday(1/17/2012).

Yesterday was a rough day.  My husband went to work like usual and I sat here and cried.

For the last month and a half I have been sick. Real sick… you all know what I mean. I’ve lost like 35lbs and haven’t done anything but loose the job that I just started.  I worked for 3 days before this flare started.

But with my new diagnosis comes some hope too.

 

I feel better knowing now that all the times I couldn’t leave to toilet, had to poop on the side of the highway, and was way sicker than the stomach flu that was going around really warranted that there was another reason. I was not completely terrified since I have been working in the medical field since I was 18. But I was feeling sad and like oh whooess me.
Today I got online to get help making a grocery list for my new low residue diet that my GI has put me on when I stumbled across this site. And really I just wanted to say thank you to all the people who have put postings up. For the last hour as my son has been running around and watching Team UmiZoomie I have been bawling my eyes out and laughing while reading everyone’s stories. I know that even though its been a hard time just getting to a diagnosis that there is still a long road ahead. But already from reading all the stuff you all have posted I don’t feel alone and scared like I did even this morning. (My husband is wonderful, but he is just as scared as I was; and frustrated that he can’t just make it go away). I loved the video of Adam cooking the fish he caught. We love to camp so that was awesome to see. Plus he totally looks and acts like my brother (enough that my son was like Uncle Aaron?). I have to go to the store now. Should be fun since my stomach is hurting terrible from the new meds that I am taking and I’ll have a two year old in tow.

But after seeing this site

UC not only seems manageable but laughable also.

Feeling positive and thankful to everyone who has posted before me. I will definitely be back to check in and read more inspiring stories. Again thank you all for helping me see the positive in the … not all that positive.

Colitis Medications:

I don’t know all the names and peeled the labels off to recycle the bottles already but lomotil, IBS meds, some terrible powder drink, phenergan, the creamy white enemas I will be having each day for the next six weeks, and a bunch of other stuff.

written by Lacey

Submitted in the Colitis Venting Area




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6 Responses to Tuesday to Thursday… I Got This

  1. Adam
    Adam January 23, 2012 at 11:36 pm #

    Hi Lacey,

    thanks so much for sharing what’s happening with you right now during these tough times. I can remember pretty clearly how I was feeling after my diagnosis a few years ago, and it’s a tough time. I’m glad you and some of your family enjoyed the video, i’ll make sure to continue with at least 1 camping video per year, and hopefully more!!

    Keep your head up, UC is tough, but it’s not the end of the world and you’ll get past it too!

    -Adam

  2. Lara
    Lara January 24, 2012 at 10:00 am #

    I’m so glad that you’re starting to see the positive in this disease. I remember being really depressed after I got diagnosed & this website helped me cope a lot! (Thanks Adam!) The low residue diet can be pretty tough. It’s sooooooooooooooooo important that you stick to it. I found it helpful to have my mom do it with me. (I didn’t feel quite so alone eating such bland food!!) Maybe you can ask your husband to eat the same thing you eat for berakfast/dinner.

  3. Katya
    Katya January 24, 2012 at 4:31 pm #

    Hi Lacey,
    It’s awesome you found this site right away. It’s the best, and there is a plethora of information to be found here. While you are at it, there’s no harm in reading about the SCD diet… Adam did a great job putting lots of info about it here. Lots of us, not all, benefit from it, it takes about a month to figure out if it’s right for you, which isn’t that long when you’ve got a “chronic” condition. Anyway, I wish you all the best. I just wanted to mention that I was taking Lomotil for a while… long story short, after seeing upwards of 10 GIs over the last few years starting with local private clinicians and ending up at really awesome research hospitals, I was told to get off Lomotil because it actually is bad news for UC and can make it worse over time (mine sure got worse over time, probably from a million things I was doing wrong) . Just some advice that might help your health in the long run is to find the best GI doctor in your area specializing in IBD, preferably at a research hospital. Only at that point did I feel like my doctors really knew their shit, so to speak.
    Hang in there, I do stand-up comedy and include a section about my UC and the crowd loves it :)

  4. Melissa Lawler January 24, 2012 at 6:07 pm #

    Welcome, Lacey!

    Adam does rock!

    You will have good days and bad days. Hang in there.

  5. Paul Willoughby January 24, 2012 at 6:27 pm #

    Best wishes to you. I hope that you get to the point where it is manageable.

    Paul

  6. Swirlibra January 28, 2012 at 4:06 pm #

    Yes sometimes you really just got to try to make yourself smile and make little jokes to yourself. Reading up about this issue we all deal with on the net helps so much. We just got a lot more to deal with then the average person. It sucks but oh well. Things always can get better.

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