What’s up UC’ers, I’m Megan.
I’ve been living with Ulcerative Colitis since October 2003. Trying to put off surgery as long as possible.
Here’s My Story:
I was diagnosed with UC when I was 4 months pregnant with my 2nd child – October 2003! Hospitalized for 11 days (went into pre-term labor twice) and then was sent home with a PICC line for the duration of my pregnancy! Had my first colonoscopy 5 months pregnant – now that is fun!!! Made it through the pregnancy with little real food (TPN nutrition in the PICC line) and delivered a healthy baby boy at 35 1/2 weeks…..he was 8 lbs 10 oz…..he really liked the TPN and all the steroids I was on!
My UC went into remission immediately after he was born. I lived very normal until he was 10 months old – then it all came back. My GI doctor put me back on Colozal and prednisone. Was able to taper off the steroids within a few weeks and live pretty normal on just the Colozal.
That was until October 2010. Everything came back again in full force. After a colonoscopy it was decided to try 6MP. Started that new medication in January 2011…after 2 weeks on the medicine I was hospitalized with severe pain. It was determined that I had a reaction of some kind to the 6MP. I was on morphine for 6 days ti help recover. Remicade infusions were the next step! Received my first infusion during that 8 day stay.
I continued with the Remicade ramp up procedure – 2 weeks, 4 weeks and then 8 weeks! However, I couldn’t make it to the 8 weeks so I had to add a 6 weeks one in there. My GI Dr. doubled the Remicade dose and said lets try to make it to 8 this time! I wasn’t feeling great beginning at week 4 so I searched out an acupuncturist that has experience with UC! I started seeing my acupuncturist twice a week at the 4 week mark. Today I am starting my 7th week between infusions!
It hasn’t been easy getting here – but I believe that the acupuncture is helping me get by. I’m scheduled for my next infusion this week….praying I feel tons better after it and just need to use the acupuncture near the end of each 8 week cycle! If not – then back to the drawing board and surgery moves higher on the list of fixes :(
-Submitted by Megan in the Colitis Venting Area on June 20th, 2011