I was diagnosed late 2008 by an internist in a town close to home.
My bleeding, frequency kept getting worse. He continuously kept switching my “preventative” meds. If I saw the slightest bit of improvement I would think hopefully “ok now I will get better”…only to get worse again. I quickly read a few books to learn more. The first book kept saying how I will run to the bathroom and will know where every bathroom is everywhere I go( My frequency wasnt too bad at this time and I did not have the urgency this book and a few others were talking about). I knew if there was a way to stop this vicious disease I was going to try. I saw a naturopath, registered natural dietician(which had some great ideas). All was failing me until oneday I could not stand it no more. I was frustrated and worried I wouldnt be able to work much longer so I searched for a new doctor on the internet in the big city 90 mins away. Found an IBD Group and emailed them quickly. That day a secretary emaile d me back with the name of a doctor. As quickly as I could, I got my referral and was seen with in week or so. I am so glad that I knew in my heart of hearts that I was not being treated for my symptoms and that I needed to move on and find someone who will listen to what was going on. (By the time i had gone for my 2nd colonoscopy I had the frequency and urgency all the books were talking about) Of course hospitalization and prednisone is what I required….treatment not prevention. And the new doctor, is a man i will always be so grateful to!
Now I am on remicade every 6 weeks(started winter2009) and doing quite well although I do find after the 4th week some symptoms start to reappear…but its all manageable! (I am also on Pentasa).
I do hope that if you do not feel that you are being listened to trust your gut and move on….I did and it helped tremendously!
(Thanks anonymous poster, what a great ulcerative colitis success story! a what a great surprise for a Sunday! Thanks, Adam)
If you are wanting to read more stories about Remicade here.
All of the posts from “Annonymous UC” are from ulcerative colitis people who anonymously submitted stories or Doctor Reviews, medication, supplement reviews etc… I post all these stories to the site, but they’re different from my own personal stories so hopefully this account makes more sense:) -Adam – founder of iHaveUC.com