Hi. I’m a single mom in mid 30’s diagnosed with UC in 2010. I’ve had one hospitalization for almost a month this past year and needed almost 6 months to recover.
Just recovering from an almost month long hospitalization last winter. I’m almost out of the woods with occasional pain and side effects from medications.
This is a great website and not only have I learned a lot, but i don’t feel as alone with this disease. Besides my failing health, I’m most concerned about money. I know Ulcerative Colitis and Chrohn’s is on the ssi disability list and was wondering if anybody has applied or currently is on disability for it? I have a very physically demanding job that has crazy hours during the night and am worried about future flares as well as dealing with side effects from all my meds, almost 20/day, and remacaide every 8 weeks. I barely work now as sometimes I need a full week to recover from other illness whereas before I could just work with a cold, sinus infection, bronchitis, etc. So I’m considering applying but am torn being a single mom and i can never get my job back… One of those rare jobs that once you are out that’s it. Plus this economy sucks and no one is hiring for anything anymore much less a job with good pay and benefits like I receive now.
I also am concerned about health care and if I would qualify for free health care. I would like to go back to school to work in another field that is less demanding too. Not sure what to do and if anyone has an insight or experience with this I would sure love to hear it! Also i own a home and not sure if that would affect any kind of benefits. Also what if god forbid they remove my colon and I’m ‘cured’ would i get kicked off disability? Is disability for life or can they kick you off? Ive never received a dime in any kind of aid.. Even college i paid outright! So I don’t know much about this whole process. Thanks! :)
Where I’d like to be in 1 year:
I’d like to be happy and healthy in one year! :)
Imuran 150 mg/day (3 pills)
Balsalazide 6,750 mg/day (9 pills)
Prednisone 40 mg/day (4 pills) just finished a long/weighty :( run of that
Remacaide every 8 weeks
written by Betsy