…They obviously never had UC!
30 yr old mum of 2 from UK diagnosed in August with moderate to severe pan colitis during my first colonoscopy. Into my 6th month of this horrible disease!
-My life’s been on hold for a bit recently but I love photography and painting. And a good party!
Currently 4-6 very loose stools a day, cramping, gas and this week the blood has returned!
My Colitis Story:
Shortly after my second son was born I started getting cramps/pain in my left lower abdomen. I breast fed him until he was 8 months and a week after that the diarrhea and vomiting started. I put it down to food poisoning or a bug. Saw a general practitioner and she said I had gastritis. I lost a stone in 2 weeks. The d continued so they said post irritant ibs. And stress ibs as I was nursing my terminally ill mum. Then the blood started. They said hems but the amount was scary. I felt so exhausted and the urgency was as you all know unbearable. I ended up being taken by ambulance to hospital for iv fluids and antibiotics and iron as anemic. Docs faffed around for ages with stool samples etc and blood tests. Then in August I saw the gp I’d seen in may and she organized a colonoscopy 3 days later.
I kept a food diary and have eliminated gluten as wheat is a sure fire bleeder! Chocolate and caffeine are out too.
I’m exhausted with a one and four year old and living off chicken/fish/potato/avocado and carrots. Yogurt is ok too.
I lost my mum 6 weeks ago and my symptoms have been ok. She had an awful last 3 weeks but a ‘good death’ I’m tapering of the dreaded pred and down to 5 mg- hence the blood I think! Can’t find probiotics with more than 20 million in UK? Anyone any luck?
I know it’s probably irrational but my mum had colon cancer and it spread over 8 years to her liver, lungs and kidney. Then blindsided us by going to her brain. I’m terrified of colon cancer and leaving my boys. In some ways I think I’d prefer a colectomy now and limit the risk.
Just after some words of wisdom and advice.
1200mg mesren mr (mesalazine)
5mg pred down from 40mg
Imodium 1 per day to give the mesren a chance on gi instruction
Cocodamol for the pain
written by Jen
submitted in the colitis venting area