Has anyone ever been on an old roller coaster that doesn’t do any flips or upside down stuff, but all kinds of ups and downs? A ride where you are going up hills and then right back down many different times. The mental game of handling ulcerative colitis seems to be similar.
I’m no expert in ulcerative colitis, that is for sure. But after having it, and thinking about it, and feeling it for several years, it is such an up and downer its almost amazing. I’m thinking it should be called “Ulcer Roller Coastitis” right?
Is it just me, or have you also had times where your symptoms of bleeding and cramping have nearly completely gone away 24 hours after you were having surgery thoughts dance in your head?
Have you also told your family your colitis is finally under control, and then walked out of the bathroom a day later after a massive whale killing bloody stool episode?
What a roller coaster ride this ulcerative colitis is right?
Have you ever made an appointment with your gastro doctor because you are mentally drained and you are starting to have no hope and surgery thoughts are creeping farther into your brainwaves?
Did anyone ever walk out of the gastro doctor’s appointment with a shinny prescription for a new medication to try? And then race over to the pharmacy and yell at the people there to get this one filled ASAP because you are bleeding out of your tailpipe?
Has anyone also felt that within just a few hours of taking prednisone for the first time, you were finally cured?
Have you ever waited looking down into the toilet bowl, so excited to see what is going to come out because you are feeling better but want some doodie proof?
How many of us have said to someone, I think I’m getting better this time? That’s where I’m at this morning, 12 hours until the SCD yogurt is ready. I can’t wait once again.
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
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Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
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