My name is Diane and I have Ulcerative Colitis. My previous post posed the question as to whether I should participate in a Methotrexate study or not.
Some more background:
Homemade egg noodles are a tradition in my family, one of the ones I have enjoyed through the years. I like to put them in my soup, but if I follow an SCD diet I cannot do this.
My end of January, 2015 colonoscopy came back completely clear of UC. I contribute this to Bev’s probiotics, the SCD diet, stress reduction, Lialda, and Rowasa enemas. My doctor found this remarkable since 15 months prior I had disease up to 35 centimeters, left side.
I have had Ulcerative Colitis for almost 40 years. It progressively worsened as I aged and came out of denial of the symptoms. I am very independent and will do just about anything to stay that way. This is the motivator that keeps me disciplined enough to follow the SCD diet. I have also been diagnosed with skin cancer so some of the meds were not an option for me.
It was suggested to me that I become part of a methotrexate study since I was not able to take Lialda without the side effects of headaches, rash, and severe leg cramps. This option was dependent upon a colonscopy scheduled for the end of January.
Ulcerative colitis has controlled my life for so long that I forgot it was doing so. I have always watched my diet due to the consequences of not doing so but I managed to hang on to the few loves I didn’t want to let go of. For me this was the traditional noodle making, I learned how to make them gluten free but when I went on the SCD diet I couldn’t have them at all. I think this was very helpful in my recovery, to completely let go of grains for a period of time. I am still very cautious of the amount I consume. Sugar was the other culprit without a doubt. Even though I had reduced my intake of sugar significantly in the last 25 years I still needed to avoid it to heal. To hear the doctor say, “I know it was there because I could see the scars” was such a blessing. Thank you all for your support through this difficult time.
I do my best to stay aware of the emotional triggers which activate my disease. This is probably my biggest challenge. We live in an always increasingly stressful world that requires us to consistently update our healing practices.
Medications / Supplements:
written by Diane D
submitted in the colitis venting area