Visit this page on the site to write your story: CLICK HERE (the colitis venting area, as it is known)
I started site shortly after being diagnosed in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
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I’ve written 2 different ulcerative colitis ebooks, you can check them out here.
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Diet made all my symptoms better –
I took out red meat, do not eat anything fried or greasy (I pay for it even If I have something a little greasY) eat lots and lots of cooked veggies and fish, do not eat dairy unless it is goat or sheeps cheese (can handle a little of that) – never drink cows milk (use almond milk, so yummy!)and have no gluten –
I eat other grains (rice, beans, lentils) and can handle them
I have been off predniosne fora month – take some colozal and supplements(fish oil, multi vitamin) and am feeilng SO MUCH BETTER!!!
Dotors who say diet does not matter are nuts – what you put in your stomach makes a huge huge difference -my gastro said to eat easy but not much else – when I told him I took out red meat he said “I do not eat it either” when I asked him why – he said because it is hard on your whole GI system -… See More
wow – preach what you practice!!!!
hello to all i am new to the chat room, well where to start Im 29 years
old had colitis since i was 17 in 2006 they removed my entire large
intestine and just recently i got cuffitis(which in lamen terms i felt
like i was shitting razorblades for 2 years)i had a bag for 10 months,
they also found 4 blood clots in my lu…ng and i am lucky to be alive. So
im recovered now and kicking ass and taking names and starting a
company to help people like us. If anyone ever needs to vent or talk
about anything please friend request me im here for you… Kick ass and
take names flare ups suck but this disease made me who i am and i would
not change it for anything. Love you all and good luck!
I am so horrified to think that for so long I was told and really thought there was nothing I could do about my UC. I totally trust my doctors but now understand that they are like scientists who see an illness and try to cure it with medicine. I now know that we can do SO much with just changing our diet. I am wheat/gluten free and even though I have a teeny tiny bit of milk in my tea I’m also dairy free. I’m still on Asacol (12 a day!) but no steroids now for 3 whole months :) My doc said I can maybe start bringing my Asacol down too. Feel better than ever thanks to my new healthy diet!