Teenager with Ulcerative Colitis

Hi my name is Alan.

Just a few months ago I was diagnosed with ulcerative colitis. I was having really bad diarrhea for months and went to see three different doctors and none of them could figure it out. Eventually it got so bad I had to go to A&E. Finally after dozens of tests and spending 10 days in hospital they finally figured it out. I am managing nicely so far and I fell better then I have in a long time.

I just wanted to know do you have to continue taking steroids if you have ulcerative colitis?

Submitted by “Alan” in the Colitis Venting Area.  You can submit your personal colitis story as well on the colitis writing page here.

There are many other stories about steroids as a colitis treatment on this site.  Feel free to visit some of these stories:

Trip To the Gastro Doctor Tomorrow

ALSO, there are hundreds of other stories which have been submitted by people who were also recently diagnosed with ulcerative colitis, some of those stories are listed here:

Does Colitis Remission Mean No Symptoms?

Mono and Right After Ulcerative Colitis

Back and Fourth

New to Ulcerative Colitis

About to Start the SCD Diet and Need Advice




3 thoughts on “Teenager with Ulcerative Colitis”

  1. Hi Alan,

    I have thankfully never had to take a steroid and have got by with using Asacol and suppositories. I was diagnosed with colitis when I was 20 so I know what it feels like to have to deal with it at the age that is supposed to be your prime. Since you’re so young, I highly suggest trying the SCD diet (Specific Carbohydrate Diet) and avoiding strong meds like steroids if you can. Of course, that’s a personal choice for you to make but it is definitely something to consider. I just started it two months ago and it has been really great. Let me know if you have any other questions and glad things are under control for you.

  2. Dear Alan,

    It’s come to the point where i’m taking steroids now. It will be in total an 8-week course starting at 40mg, then 35mg the next week, then 30mg etc… Unfortunately the 5-ASA treatment didn’t work for me. In answer to your question, no you don’t have to continue them forever. If it doesn’t treat your flare up then maybe they’ll give you another course or they might try infliximab (remicade infusion)… That’s the IV drip given to you in hours which is also a stronger version of steroids. There is a 1 in 4 chance of an allergic reaction.

    Our stories are quite similar actually, i’m also a teenager who was diagnosed a few months ago! Are you part of the “I have UC” page on Facebook? Look for me.


    p.s. – Get better soon!

  3. Dear Alana,

    You do not have to continue taking steroids unless they don’t work during your first course. I’m currently on an 8-week course which is getting tapered down 5mg each week until I hit 0mg. The next step is to get the remicade infusions (a.k.a – infliximab) which is a stronger mix of steroids. There is a 1 in 4 chance that you’ll have an allergic reaction so it’s not really preferred but good if necessary!

    Our stories are similar, i’m also a teenager diagnosed a few months ago, April in fact… Are you on the “I have UC” page on Facebook? Look for me…

    p.s. – Get better soon, UC is a bummer!

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.