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crohns

My Upcoming Colectomy Surgery

So after many months waiting and trying to get funding and paperwork ready for surgery…. it’s finally come together.  I haven’t been writing much because things have basically been the same – cramps, blood, joint pain, etc. But as of today, May 5, 2010 I am now ready to schedule the J-Pouch surgery and colectomy and ileostomy and be able to document it and detail… Read More »My Upcoming Colectomy Surgery

when is a diagnosis not a diagnosis?

…when it’s not really definite! So , I got to see a consultant gastroenterologist last week. A very pleasant young man. He said I had Inflammatory Bowel Disease, but it was difficult to diagnose whether it was Colitis or Crohn’s, but because of some of my other symptoms, i.e. mouth ulcers, joint aches etc, he thought that it was more than likely to be Crohn’s… Read More »when is a diagnosis not a diagnosis?

My Drugs

okay, today is March 8, 2010 and I have now added another drug to my list of medications I’ve taken, as well as another drug they’ll be giving me in the coming months. I thought I would type out a list of all my drugs to better give an idea of what some people might expect to be on at some point. Mesalamine or Asacol/Pentasa/Lialda: … Read More »My Drugs

The Spoon Theory

I recently came across this article written by Christine Miserandino (www.butyoudontlooksick.com), called the Spoon Theory.  People always ask me what it’s like being sick with a chronic illness and it’s always been hard to explain. When I came across this article, it was as if I had a small epiphany, and I realized what an ingenious way to explain how everyday waking up and doing… Read More »The Spoon Theory

humira rash on legs

Side Effects from Humira

First of all, thank you for coming to this website.  I really enjoy receiving emails and messages from the wide range of people who visit these posts. Back in January of 2009 I was started on Remicade.  This is a drug which you take via an infusion, and it is approved by the FDA for Ulcerative Colitis.  For me, I traveled down to the PAMF… Read More »Side Effects from Humira