I have had UC for the past 20 years… I went thru flare ups bad but I am one of the ones that medicine did help me…. I am on remicade now and am in remission.. but now I had a low grade dysplasia polyp removed but no dysplasia was on the colon.. GI Dr. recommends colonectomy… getting 2nd GI Dr. opinion 8/13…
Some more about me:
tattoos; dogs-have 3 of them… swimming… bowling… tanning.
been in remission over a year…
Precancerous Polyp-Surgery Time When?
Well I am not sure what causes UC.. But in my opinion STRESS and genetics… Did not know anyone in my family that had it… but I was in a very stressful marriage then one day I went to the bathroom and saw blood… scarey.. but not emergency to DRs. had barium enema.. would rather have colonoscopies over these…so was diagnosed with UC.. went to GI specialist..
They started me on steroids.. prednisone.. asacol.. 6-mp… but I hated taking so many pills … stuck with steroid.. that initially affected me terrible with rosacea on my face that embarrassed me awful… but eventually went away… weight gain… I never got skinny from UC cuz I luved eating … well finally remicade was approved for UC and did it and it put me in remission… but then lost health insurance and had to stop … was going thru divorce then and UC hit me with vengeance… I was able to get state insurance and get some prednisone(cheap even without insurance)… well my GI Dr. treated me conservatively on the 40mg prednisone when I was in a bad flare up.. I called my primary care Dr. to see how much I could take safely.. She doubled it 80mg… and OMG.. I felt human again it slowed the flare up WAY down… so for a few yrs did the steroids till I got back on remicade…
Now I am feeling normal without any symtoms of UC.. but now have to make that life altering decision of surgery… cuz of precancerous polyp… no one knows how quickly cancer develops with UC…
I don’t want cancer for sure but I would feel like I am gonna have to go backwards but at least if I do get the surgery I will be in tip top shape for recovery.
written by Suzzi
submitted in the colitis venting area