11 Responses to Sulfasalazine Reviews

  1. Ilene Elizabeth November 29, 2014 at 1:35 pm #

    My doctor put me on Sulfasalazine. However, I am allergic to Sulfa, which he knew. The results were disastrous.

    • Rhonda Louise May 24, 2015 at 5:57 am #

      I would love to know what you’re taking now Ilene?

  2. Lori November 29, 2014 at 1:51 pm #

    I took sulfasalazine when I was first diagnosed 34 years ago. No side affects, just had a yellow tinge to my complexion.

  3. Debs November 29, 2014 at 4:09 pm #

    My First real serious UC flare I was prescribed sulffasalazine by A&E doctor. Made my urine bright orange, I started to look slightly orange too. The pain in left side got worse and I was extremeley light sensitive and blurry eyes. I was hospitalized at the time as needed IV steroids . Took sulf for 4 days only and when my consultant finally got round to visiting me on the ward he changed them immediately to Octasa MR 800 mg dont think they are doing anything the steroids hadnt started. I’m currently tapering of prednislone 3 months left to go!!

  4. Lisa B June 15, 2015 at 7:30 am #

    I was diagnosed with UC about a month ago. I started Rowasa (contains sulfasalazine) the next night. Within 12 hours, I started with flu like symptoms, gooey eyes, high fever, and finally, a horrible rash. I continued to take it for two more nights because I thought I had a virus! After three days, I took myself off of the Rowasa despite my dr not thinking the two were connected. I immediately began to get better but it took me several weeks to get over the reaction. In retrospect, I should have been in the ER. My reaction was serious…involving my mouth and windpipe!

    I took Canasa next and suffered another (not as scary) reaction. It seems as though I’m not able to take any of the “baby” drugs. In the words of my GI…”you are screwed”. I’m currently taking Uceris. After a week, it has cut my frequency but that’s about it. Now he wants me to consider Imuran for maintenance. And no discussion of diet from him, but I bought and read BTVC on my own, and I’ve started SCD.

    I hope my review helps with someone starting sulfasalazine. If you start it and experience what you think is a virus or the flu…stop and go to the ER! This could be dangerous!

    Wishing all of us a cure!

    Lisa B

  5. Lindsay November 19, 2015 at 3:23 pm #

    I was prescribed sulfasalazine for my UC I did not have any side affects including it did not help me with my UC. My urine did change color to bright yellow I guess. I just stopped taking them because they didn’t seem to help. How long did any one take them before they noticed symptom relief?

    • Roger November 25, 2015 at 3:31 pm #

      When it worked for our daughter, it took 2 weeks, about to the day, for sulfasalazine to kick in. BTW – I have the posting above – about the brand of sulfasalazine. Well, it’s no longer controlling either. TBD next steps – got the flare knocked down with pred, and tapering down to see what happens…

  6. Mo Anantatmula October 8, 2016 at 2:22 pm #

    I was initially diagnosed as having Krohn’s disease 22 years ago I was taking Asacol and I was still bleeding occasionally. I went through 2 GI doctors with no real success. About 5 years from my first diagnosis I saw a third GI doctor who knew what he was doing. He diagnosed my disease correctly as UC through genetic testing and colonoscopy. He prescribed sulfasalazine 4 (5oo mg each) in the morning and 4 before dinner. He also prescribed 2 PPIs, one before breakfast and 1 before dinner. In addition, he prescribed folic acid (1mg/day). He also prescribed Canasa suppositories. After a few months my bleeding totally stopped except right after colonoscopy, which is expected, but it went away quickly. However, all this time I have been having joint pains. My doctor attributed that to UC. We moved from that town when I retired and about 5 years ago I started seeing a new doctor in the new town. He approved the medications the previous doctor recommended and, in addition, he wanted me to eat Greek yogurt to introduce good bacteria into my gut. I have had no UC flares the last 5 years, however, my joint pains still persist. I am trying to cut down on my sulfasalazine to see if that will reduce my joint pains. I am doing this while taking Lglutamine, which I buy from the market. I hope this will help other with UC. I would also like to know from the viewers if they can suggest some natural remedies so I can slowly reduce and eliminate my PPIs and possibly sulfasalazine.

  7. Karen May 27, 2017 at 7:11 pm #

    Be careful with L-glutamate, I was given Large amounts by a homeopathic doc? and overnight literally, I lost the ability to fall asleep. That was 11 years ago.
    I since found out about something called a Glutamate storm which changes the exchange of chemicals in your brain. You need Gaba to relax and fall asleep, the glutamate inhibits the action of this gaba.
    I have had to use Ambien to sleep for years, and now just started the GARD diet to reduce eating high glutamate foods, which coincidentally helps my U C . No dairy, grains, soy, corn.
    I don’t remember how much L-glutamate I was taking, but I know I had bought a large tub of it, and after a month or two, I quit sleeping

  8. Paul November 19, 2018 at 5:20 am #

    I have a question for the group.
    I would like to know if anyone has had success with CBD Oil? I don’t fully understand it but I understand this part of the marijuana which is not part of the THC which gives you the high can do medical wonders including maybe IBD?

  9. ladyjanitor February 24, 2019 at 4:25 am #

    When I was first diagnosed with RA, my doctor immediately put me on prednisone, sulfasalazine, and MTX. The combination helped the pain a little bit but I didn t get substantial results until I got on Humira.

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