Here is an email I received this morning from a girl named Sarah who is currently struggling with out of control ulcerative colitis symptoms.
Please read her question, maybe some of you have been in a similar situation regarding medications not working properly, and doctors recommending surgery. It’s a difficult situation for anyone to be in, but let’s try to help her out. I think we can.
Hi I was wondering if you could help and ask other peoples advice on this. I’m 31 years old and currently in hospital with my ulcerative colitis on IV steroids. I have been on Azathioprine for 4 months, Humira for 5 months and low dose prednisolone for the last two years (now dependant) I’m reacting well to the IV steriods as expected but doctors advise it won’t be sustained. I want to try Infliximab as a last resort but they say there is slim chance of it working and want to do an Ilemostomy, which I’m scared of. Has anyone had any success with Infliximab following no improvement with Humira and Aziotheroprine?
Many thanks Sarah
Sent from my iPhone
Sarah, this is what I think…
Take a few minutes and read over the Remicade reviews. The reviews pages have been created EXACTLY for people like you who have difficult questions that doctors are not always able to easily/quickly answer.
I just read through several of the reviews on the Remicade page, and there are most definitely answers to your questions within the details that some super awesome UC’ers have left regarding their experiences.
So again, please read them, they are for people like you.
The page is here: https://www.ihaveuc.com/remicade-reviews/
Also, you’ll see, there are similar reviews pages just like the remicade reviews page for several other medications.
Sarah, (and all others who benefit from the reviews)
Please do a big favor for future users of the site, simply fill out your own personal reviews once you are feeling better and out of the hospital for any medications we have reviews pages for and which you have personal experiences. (Azathioprine, prednisone, and any others).
All Medication Reviews pages can be found here: https://www.ihaveuc.com/remicade-reviews/
**For anyone who has some ideas for Sarah and her question, feel free to let her know via comments below.
Stay warm UC’ers, we’re already into February…(oh my…)
And a huge bit of happy-feeling-good-vibe-colon-to-colon good luck to you Sarah for a speedy recovery no matter how you decide to move forward.
(Why can’t docs give you for sure feedback to your question…well…GI doctors don’t typically manage 50,000 UC patients per month. Maybe a few here and there, so we can’t expect them to personally know the typical outcomes of specific questions like this. And we also can’t rely on busy Gastro doctors having time to keep up with the hundreds of studies released each month pertaining to ulcerative colitis. That is just not reasonable folks, but…we can stay on top of this ourselves, or do our best eh:)
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
You cool with that? good!
now get on our newsletter so we don’t forget about you.