My Colitis Right Now:
Currently I’m having my first flare since diagnosed and what I guess was remission for the past year. The first time was some blood but mostly diarrhea. I went from 205 lbs to 155 at my lowest. Today it’s mostly just bloody water after a movement. Bloating and gassy too.
I was an outgoing man who worked in construction. I played pool league the nights a week. On weekends I’d spend time with friends at the local brewery. That all came to an end when I first came down with UC.
It’s something when I described it to my friends and family that I wouldn’t wish on my worst enemy. 10-20 bathroom trips in the middle of the night. Scared to eat I became anemic.
My first GI visit seemed to go well we set up a colonostopy. After yeah my colon was completely irritated. I tried some of his sample drugs. Not sure if they worked. My flare was really bad. Even if they did I couldn’t afford them. Then went to a cheap drug sulfasalzine. Didn’t seem to help but turned my pee yellow. Of course Prednisone. Really the only thing to kind of help but of course the side effects were concerning.
At the end of the first flare I was put on anthrosorizine and another drug I forget the name but after the first month my pharmacist flagged it and said he needed to talk to my GI before refilling. Strange enough I hadn’t heard from either again for a year and half.
Weird as it may sound I had started smoking medicinal grade marijuana to spark my appetite while I was sick the first time. Whether or not it helped with my remission I’m not sure but it did help with the stress which I believe mine is derived from.
I’m now getting a referral to a new GI cause my trust had been broken with my first. I couldn’t even get him to prescribe me Prednisone to help till I could see my new GI in the city closer to me. Oh yeah I’d moved recently. An hour and half away from my first GI.
So here I am now down to my last four pills hoping they and my weed will hold off a bad flare till I met my new GI. Wish me luck.
I’ve read about everything out there medication wise but my hands are tied with cost. I last looked at Entyvio and laughed out loud at its outrageous cost. My medical marijuana is all I’m on. Does anyone use it? Has it worked for you?
written by Salomon
submitted in the colitis venting area
42 year old male construction worker. Had a active fun life. Was married. All of that ended for over a year on my first flare.