Stop this Rollercoaster, I Wanna Get Off!

Introduction:

Hi I’m Cindy, I am 51 years young and I live in Cambridge, Ontario, Canada. I am a Cleaner. I have a small cleaning business named Clean Angel. I have two grown sons, one in the Canadian Armed Forces and the other a Landscaper. I have a super adorable grandson who will be two in August!

Some more about me:

I enjoy the great outdoors….hiking, the beach, fishing……the changing seasons….a walk on a snowy winter day or a bike ride on a sunny summer day. I was born and raised by the Atlantic Ocean in North Eastern Quebec Canada. I am fluent in French (however a bit rusty now that I live in Ontario).
I like to sing, I was 7 when I sang in front of my first audience…….

Colitis Symptoms Right Now:

Currently I have pain in my lower right side of my back, most days cramping and discomfort left lower abdomen, oh so much gas, joint pain mainly at night, have trouble staying asleep at night, despite the fact that I keep my butt well lubed I still deal with the pain of hemorrhoids daily. Lately feeling lonely and depressed and discouraged.

Stop This Rollercoaster

Firstly I want to say that I’ve always been the type of person who does not give up easily. I have had many struggles and have always got back up when life got me down. I started noticing bleeding in my poo in August 2011. By the time I went through all the waiting so on, so forth, I was finally diagnosed in June 2012. I hadn’t pieced it together until months later, but it seemed that it all started when I quit smoking. When I was first diagnosed I started taking Salofalk. 1000mg in morning and 1000mg at night. I stopped eating raw veges, nuts, seeds, alcohol, spicy foods, red meat…..by late September I had stopped bleeding and everything seemed ok. So GI says go back to eating regular foods….when I did I starting bleeding again and cramping, leg pain, hemorrhoids ect….so GI says double dose the Salofalk to 2000mg in morning and 2000mg at night and enemas……still no change, but now I have extreme joint pain. GI scheduled ano ther colonoscopy and he suggested Prednisone. I didn’t want to do Prednisone after reading about most peoples experiences with it being a short lived fix and all of the risks and side effects. I really want so much to do this without taking tons of different kinds of drugs. So I put the brakes on and dropped the dosage back to 1000mg, (against his wishes) within 2-3 weeks the joint pain decreased immensely. During all of my ups and downs I had done a ton of research and found this site(Yay!!) and stopped dairy, wheat and sugar. I read Bev’s posts and started the L-Glutamine and Probiotics which seemed to be helping as well. Started having more formed poo…..and as long as I eat the same things and nothing out of the ordinary happens in my life….but that would pretty much mean almost becoming a hermit. Considering my current symptoms….I am not where I would like to be. I started 7mg nicotine patch daily, seemed to give me more energy, no real side effects, too so on to tell if it’s helping……but back pain started since I’ve been taking it…….can’t see how that would cause back pain…..

 

I just purchased a Nutri Bullet and had my first shake today….I’ll let you know how it goes :)

 

 

Questions:

• Does anyone else have blood streaked through their poo every day?
• Is it normal to feel irritable most everyday with UC?
• Does anyone else experience right lower back pain?
• Has anyone tried the nicotine patch?

Hope is what I need right now, just don’t know which way to turn. Overwhelming.

Thank you in advance,
Cindy

Medications:

Liquid form Omega 3, vitamin D3, Sublingual B12, Probiotic and L-Glutamine, 1000mg Salofalk 2x daily. 7mg Nicotine patches (8am-5pm) For sleep….sublingual Melatonin and when I am exhausted Mylan Zopiclone.

written by Cindy

submitted in the colitis venting area