Diagnosed with UC in 2010 and Autoimmune Hepatitis in fall of 2010. I am awaiting a possible diagnose of Autoimmune Bullous Dermatoses. I have about 2 BM per day except when I am about to have my “monthly” which can make me GO sometimes up to 5 times a day. Other then that I consider myself lucky as UC is pretty much under control
Some more about me:
I am a professional Dressmaker and West Coast Swing dance teacher. I enjoy going out on the town and dance on a regular basis. My husband is in Classic car Restoration (he refurbishes old cars) we love going to hot rod or drag race events in our RV.
Skin Condition Related to UC
Lately, well for about 1 year now my I have been having some weird reaction (side effect?) with my skin. Right now it is on my lower legs and forearms. Each time I happen to bump, knock or any other form of physical trauma I have those blister forming, that is if my skin don’t rip off (sort of peel off) literally. I have seen a Dermatologist who was baffled by my condition so she sent me to another Dermatologist and I ended up with a team of 9 interns hoovering over me. Apparently I should feel special… I’d rather not. They think I might have developed what they call Autoimmune Bullous Dermatoses. I am awaiting the definite diagnosis from the 2 biopsy they took on August 21. I see them September 28th for the results.
In the meantime I believe I have read on the UC website that someone who had a similar condition, if so would it be possible for you to refer me the name of your specialist(S). As well as the details of your condition and how it was treated.
What I am reading online would mean more DRUGS and I am currently trying to get off mine. The tricky part in my condition is the Hepatitis Auto-Immune I suffer from (also referred to as Autoimmune Cholengitis, though I don’t have the exact symptoms of this disease…)
To make all my medical condition more “entertaining”: My liver specialist (Hepatologist) just passed away, may he rest in peace, he was an incredibly good person and doctor. Plus my GI is on maternity leave, and here in Quebec they can take 18 months leave of absence after having a baby. So I have been pretty much put on a desk of not one but 2 replacement specialist whom have already their plate full therefore I wont be seen in the fall for my regular appointments.
Thanks in any information you might give me:)
Salofalk for UC
Ursodiol for Hep Auto Immune
written by Manon
submitted in the colitis venting area
I was diagnosed with UC in 2010. I must say I have it pretty much under control since official diagnosis as my specialist put me on Salofalk almost right away. I see both my specialists every 6 months and I do blood work every 3 months.