Since I Was Six

Emily ROse fullMeet Emily:

My name is Emily rose and I live in CT. I’ve had UC since I was six years old and have been getting the remicaid for about six weeks so in eight weeks I will be getting my fourth infusion. I had a colonoscopy about four to five months ago and that was when my doctor put me on enemas and six asacol a day. I am now only on three a day, no more of the enemas, and the remicade

Some more about her:

I try to go for walks in the spring and fall but mainly in the summer, I can’t run be wise of my UC and I also have asthma.

Symptoms:

The symptoms I’m currently having are I am hungry a lot more often, I have blood here and there but not as bad as before remicade. One new thing that has started is that when I go to bed, I don’t fall asleep until about 3 in the morning and don’t get up until about 1-2 in the afternoon. I am not used to this so I don’t really know what to do exactly, but I’ve tried sleepy time herbal tea, night time cold Syria to help you sleep, sleeping pills, but nothing is working for me and I’m at the end here. I need to know if someone else is having this problem and how to deal with it properly.

Since I was Six

Well like I’ve said, I’ve been dealing with this since I was six years old and I don’t think I’d change my life be wise if I didn’t I would be a unique and more of myself than I am, but any tips for other UC-ers, I would say don’t let this stop you from living your life and what you want to do. I love to sing and the bathroom is one of my favorite places to sing so it works out I guess. Lol I’m going get the gastric bypass not only to be skinny and beautiful, but also healthy. And I am not letting my UC get in the way. The way I feel about doctors always checking at my behind is that they don’t really anymore and I hated it when I did have to get it..it was disturbing and the fact that I don’t even have a nice looking butt is very saddening to me. I am 230 pounds and I am not proud at all. I wish I was at the weight of about one hundred forty, or one hundred thirty. I have always wanted to be skinny but I have always been bigger my whole life. My family does not think anything of it really. I am just another human in the family. I have lots of loving friends, I have relationships , though I am currently single at this time, but I live a normal life other than on the days I have my infusion or a colonoscopy or something at the hospital. I go to Hartford Children’s Medical Center in Hartford, CT. I love it because they take care of me like no other hospital would or did. My do for is Dr. Zeiter. She is the best doctor I have. She jokes around, she gets serious, and she starts jokin again. She is the best and I recommend anyone in CT to go to her.

Medications:

The current medicines I am on is only asacol and the remicade infusions.

written by Emily

submitted in the colitis venting area




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3 Responses to Since I Was Six

  1. Corey January 21, 2014 at 9:29 pm #

    Good to read about how things are going with you! I was on asacol and remicade as well, so I relate there!

    Also I had tons and tons of trouble sleeping, and nothing worked from sleep aids to tea to medition. For me how I finally broke through was exercise and therapy. My mind was always going at night time and I would worry and think way too much. Exercise helped shut my brain off and therapy helped me accept the things in life outside of my control.

    I just thought I’d share what worked for me, hopefully the sleep is getting better for you!

    • Emily Rose Rogers
      Emily August 25, 2014 at 9:55 am #

      It’s very nice to see and know that someone has been on what I have and understands my pain. I also have a lot of trouble sleeping at night and normally don’t fall asleep until 4-5 in the morning but school is coming Wednesday and I have to be able to wake up at 5 in the morning. I’m also now taking lialda. And I have been struggling with my weight since I was on prednisone about 8 years ago. I get very happy when I lose the smallest amount of weight now. I weighed myself this morning and I lost 3lbs since yesterday! I’ve been drinking green tea with honey and lemon to go zero calorie packets. So I’m very happy with the progress I’ve been making, but wish there was someone to be with me and know what I go through. Until then, I hope you keep improving and ill talk soon! If your on fb you can look me up at Emily Rogers. :)

  2. Emily Rose Rogers
    Emily August 25, 2014 at 11:17 pm #

    But lately I’ve not been feeling well. I was taken off remicade due to suicidal thoughts and am now on lialda. It was working amazingly the first while when I started it but now it’s every day I go to the bathroom and I’m in for at least half an hour and it’s like I have the runs and it’s nothing but blood and the slimy yuck. These are the same symptoms I had before I was put on Asacol but it shortly stopped and now here after the medicine storm. And a colostomy bag is the last thing I want. I just hope my doc can help me so I don’t have to get a bag on my side.

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