I am currently tapering off prednizone I feel like the side effects of prednisone and other medications I am on are as bad as the illness itself.
I was diagnosed with UC at a severe level at the start of 2010 and I am still struggling to get into remission but slowly getting there. I am a 15 year old teen and I can’t go into public for long periods of time any more because of the weight gain I was a good weight of 60kgs but packed on 15 kgs from being on prednisone. I have been on prednizone now for about 12 weeks and two weeks ago I was in admitted to hospital due to the inflammation being to big for the steroids to be orally taken so they decided to give me intravenous steroids. I went from taking 40 mg of Prednisone orally to being in hospital and taking intravenous 60 mg of steroids. I hated life I wanted to die.
I honestly haven’t been through such a hard time in my life. I have a big moon face and I’m constantly scrubbing my face to prevent my acne from getting any worst than it already is.I have been sick now for a year and a half. I was going to my GP about my symptoms and he had no idea what was going wrong with me I was weak way too underweight and I was going to the toilet just to bleed sometimes. I went through a year and half of misdiagnosis of many different stomach bugs and infections I could’ve possibly had. I had had it with all these doctors and tests of stools and urine and blood.
I couldn’t take it any longer and I thought I was about to pooh out my colon literally. I thought I was about to die and Imo sure if I had left it any longer I would’ve. My step mother who is a palliative care doctor called her colleague/friend and asked her to give me referral to a good doctor and she definitely did. She gave me a referral to Dr. Arvi L and i remember the day i had an appointment at his doctors office it was horrible i knew i was about to learn something about my body which was going to change the way i saw life and lived it… he examined my belly and booked in a colonoscopy (i have the worst fear of them) I shat myself at that thought and then he told me that I most probably have Crones judging by my symptoms. My reaction was ” Is it fatal, will I die? Is it curable? What the f%$k is this?” hadn’t He clearly picked up on the fact that I hadn’t heard of this disease ever before, and I hadn’t. So here I am 5 months later still no school, no social life, no anything I basically want to die.
My friends who I was so close to don’t want to know about what I have they’re scared of what I have and they are so worried about how I feel about my self. I’m usually such a bubbly person but now Imo just flat. I don’t eat at the moment I don’t want to go near food but I have the starvation prednizone gives you. Its torture but I cant get any bigger.
I HATE UC.
I just want to know if theres any body out there that can help me. I have a supportive family… a 21 year old sister who loves me and helps me so much and a mum that couldn’t possibly give me any more love than she already does.
But they still don’t know what UC feels like.