I am currently tapering off prednizone I feel like the side effects of prednisone and other medications I am on are as bad as the illness itself.
I was diagnosed with UC at a severe level at the start of 2010 and I am still struggling to get into remission but slowly getting there. I am a 15 year old teen and I can’t go into public for long periods of time any more because of the weight gain I was a good weight of 60kgs but packed on 15 kgs from being on prednisone. I have been on prednizone now for about 12 weeks and two weeks ago I was in admitted to hospital due to the inflammation being to big for the steroids to be orally taken so they decided to give me intravenous steroids. I went from taking 40 mg of Prednisone orally to being in hospital and taking intravenous 60 mg of steroids. I hated life I wanted to die.
I honestly haven’t been through such a hard time in my life. I have a big moon face and I’m constantly scrubbing my face to prevent my acne from getting any worst than it already is.I have been sick now for a year and a half. I was going to my GP about my symptoms and he had no idea what was going wrong with me I was weak way too underweight and I was going to the toilet just to bleed sometimes. I went through a year and half of misdiagnosis of many different stomach bugs and infections I could’ve possibly had. I had had it with all these doctors and tests of stools and urine and blood.
I couldn’t take it any longer and I thought I was about to pooh out my colon literally. I thought I was about to die and Imo sure if I had left it any longer I would’ve. My step mother who is a palliative care doctor called her colleague/friend and asked her to give me referral to a good doctor and she definitely did. She gave me a referral to Dr. Arvi L and i remember the day i had an appointment at his doctors office it was horrible i knew i was about to learn something about my body which was going to change the way i saw life and lived it… he examined my belly and booked in a colonoscopy (i have the worst fear of them) I shat myself at that thought and then he told me that I most probably have Crones judging by my symptoms. My reaction was ” Is it fatal, will I die? Is it curable? What the f%$k is this?” hadn’t He clearly picked up on the fact that I hadn’t heard of this disease ever before, and I hadn’t. So here I am 5 months later still no school, no social life, no anything I basically want to die.
My friends who I was so close to don’t want to know about what I have they’re scared of what I have and they are so worried about how I feel about my self. I’m usually such a bubbly person but now Imo just flat. I don’t eat at the moment I don’t want to go near food but I have the starvation prednizone gives you. Its torture but I cant get any bigger.
I HATE UC.
I just want to know if theres any body out there that can help me. I have a supportive family… a 21 year old sister who loves me and helps me so much and a mum that couldn’t possibly give me any more love than she already does.
But they still don’t know what UC feels like.
All of the posts from “Annonymous UC” are from ulcerative colitis people who anonymously submitted stories or Doctor Reviews, medication, supplement reviews etc… I post all these stories to the site, but they’re different from my own personal stories so hopefully this account makes more sense:) -Adam – founder of iHaveUC.com