My son was diagnose with UC when he was 15 years old. He tried so many medications throughout the years and was on Prednison for the longest time.
I am from Israel and my husband is from Germany and we live in California for many years.
Our son was diagnosed with UC 5 years ago at age 15. It was a tough time with multiple hospitalization. It was also very challenging to find the right medication…most of the medications only worked for a very short time even thought the doses were high ( like the Humira… he was taking for a while- 2 injection per week…). Through High School he was taking a low dose of Prednisone. That seemed to help a lot but had a visual price… the moon-face that he was so about…
Today he is doing better thanks to a great medication -Entyvio (vedolizumab) that he gets as an infusion once a month.
He is in college and doing well, in remission for several months. Next Semester he would have a wonderful opportunity to study abroad in Barcelona for 3 months. I thought he might be able to take the medication with him and find a doctor / clinic in Barcelona that will give him the medication as infusion, but apparently it might not be possible..
Can I kindly ask for your ideas, how and where can he continue receiving this magical infusion when he is away from the USA?
I contacted as well the Crohn’s & Colitis Foundation and here are some very good advices:
“It is important to remember that patients can travel with IBD; it is just a matter of planning ahead. It is important that your son to familiarize himself with health care centers in that country. Since he will be there for the semester it will be important to have international medical insurance and find a doctor in Spain.
As you found out, US health insurance companies will not likely pay for the cost of treatment outside of the US unless it is an emergency. You can also request information on a “vacation waiver” from your insurer to see it that might be an option. The out of pocket cost in the US for Entyvio may be as high as $6,100 per vial for many patients. However in Europe it may be more that 50% less than the cost in the US. Some patients weight the cost of travel back to the US for treatment or cost of international health insurance that may cover the medication. If your son decides to fly back for the treatment, you could ask family & friends for “donated travel miles” to help you get him back home for the treatment. Please review your options and also speak with other patients/families who may have made similar choices. To speak with other patients who traveled abroad with a similar situation log onto Campus Connection or our online community at: https://www.crohnscoliitscommunity.org/ . There is a travel forum on our community site that may be helpful for you to review.”
So here I am asking for some more advices…any idea?
Thank you so much for all your help,
wishing you all health and happiness