It’s me again…Shelly from Maine, UC lifer who is now, well older than my last post in 2012, writing on my final dose of Humira anniversery(2011)! I am writing to share something new and hopefully groundbreaking and life changing to help on our road to remission “prescribed” by my Chiro. Dr. Z…Drumroll please…Des Bio-Intestinal Restore! Name should say it all!
Some more background:
I live in Maine on a lake and I love all the seasons, but my favorite is fall. I enjoy kayaking, cross country skiing, boating, seadooing, walking on my treadmill, but most of all I enjoy just being and enjoying my view and life with my spouse/life partner/soul mate/help and consoler after accidents and toilet paper supplier of 27+ years(thanks Polly) and my now 1 dog, Katie. (Miss my Wheaton!)
I regret not looking sicker so people can see how awful and sh*tty this invisible disease is and I feel bad that people don’t really want to know and understand Ulcerative Colitis/Crohn’s.
Knock on wood, fingers crossed, etc. I am currently in remission thanks to this new product although my immune system is constantly out of whack. Grim Reaper UC…
Many of you know my story or you can read my other 2…I am a UC lifer, symptoms, accidents, etc. since as young as I can remember, put on sulfasalazine before I was diagnosed, been through all the meds and am allergic and/or intolerant to all. Have vowed to never go on toxic meds. again as they have given me all the side effects and lasting effects including: permanent rash(6mp), gallbladder removal(remicade), nervous system/system issues(humira), prednisone,…too many to list!
I have been in and out of remission all my life with meds up until that last dose of Humira which essentially sent me to the hospital with so many side effects including heart racing and I already had a cardiac cath. To make sure I wasn’t having a heart attack on this med. I also have heart disease on my mother’s side along with ibd as well as rampant IBD on my Dad’s side of the family. Doomed from inside out and top to bottom!!HAHA.
Anyway, I began my journey to SCD from this point already taking a great probiotic, prescription strength VSL, adding in fish oil, vitamin D3, Spirutein in my power smoothies(complete with powerful frozen Maine native blueberries which have superpowers…for real!), frozen ripe bananas a geat trick I learned from Adam! (thanks to our fearless/groundbreaking leader of which I am proud and to say I have been with almost since its inception and am proud to call Adam a friend who has ties to Maine…Thank you, Adam.) and great help and support from my Dr. who is a D.O. and works WITH me and my gastro Dr. I have had all along.
Anyway, I gave up bread and cereal(very sad for me…I miss my Lucky Charms, Cap’n Crunch/Crunch Berries, Frosted Mini Wheats, etc, real pizza, etc. I used Adam’s site and the pecanbread (stages)site when I got really bad and had to go extremely slow. It works to eat that way, there is scientific proof and you really have to read the book, Breaking the Vicious Cycle by Elaine Gotschall, to understand the process and science. You also need to exercise no matter how little you are able to do(a treadmill is a godsend for me). Eating naturally along with scd is crucial.
I have had many flares since and missed plenty of work and life, including 3 annual cases of iritis which have occurred the end of March!
I work with special ed. Children in a petri dish of germs that is constantly beating down my immune system every winter and spring and some in between.
UC is a full body with lots of EIM’s/ individual rollercoaster disease. In my case it is clearly a huge genetic component, but I can hopefully keep managing naturally (surgery is my next option)and others’ may be external from our society’s quick fix/cure obsession with antibiotics, Accutane, very poor diet,etc. that destroy the gut biome. I feel the meds are so toxic and their toxicity is directly proportional to the length of their commercials!
I have used l-glutamine and other chinese herbs, but this mixture of lglutamine and amino acids, etc, which heal the mucosal lining, must be the secret to getting the amounts right! Let’s hope this is it! We gotta keep winning the battles so we can win the war. (Caveat…there is no magic bullet and you must make lots/all the changes.Keeping a journal is also invaluable.)
Hang in there…there is always hope….UC is a curse and a gift allowing you to show you how tough you can be, weeds out your not-friends!, and helps you to appreciate all the little things in life.
Best of health and wellness, Shelly
submitted in the colitis venting area
***Update from Shelly (I sent her an email asking her about where UC’ers using iHaveUC can a get this stuff, she replied:
Anyway that’s all I know except after 4+ months of bleeding(anemia) with 10-20 trips to bathroom…it worked within a month! Plus strict SCD. Not sure I put that in the story, but I or you can add that!
That’s the company homepage and at the bottom right it says to licensed healthcare professionals so people will have to work with someone.
Best to you both!
*****I also wrote to the company asking them about this stuff, they replied:
DesBio products are sold only through Health Care Practitioners. We do not sale products to the general public.
Shelly from Maine…UC lifer…44,diagnosed at 15, symptoms forever, been on and through all meds. and am either intolerant (my prednisone starting dose is 60 mg) or allergic!