OK so it has been a full week since first Remicade Infusion. My gut feels good!! More than good!
For past 2 days only 1 trip to bathroom a day!
Just coincidence? ……who knows, but I’ll take it! :)
Side effects…..still have joint pain, which is slightly better today, not sure why. Could be the Tyleonl and Advil. I did go to Zumba last 2 nights and spent 30 minutes in dry sauna afterwards. I feel more energetic last 2 days. I have also noticed that I have had a continuous runny nose this week, not irritating enough to take cold medicine though.
Will keep you updated…..next treatment is Oct 5th
If anyone has any comments on their experiences with Remicade please let me know, I would love to hear how Remicade worked or not worked for you, and the side effects too. I would love to hear from women out there and if you experienced any female issues related to the drug. I am still a little scared about the drug. My doctor keeps telling me the side effects are rare, but that doesn’t ease my mind at all.
Also my doctor wants me to stay on the Asacol HD (8 a day) while on Remicade and that scares me too. Why? because if I have another huge flare while on both what’s next scares me. Any suggestions would help…Thanks
Current Meds: I am currently on Probiotic VSL , Asacol HD, whole food source vitamins, calcium, vitamin D, Omega-3, I drink plenty of water daily.
Other health conditions: Hypothyroid for which I have had for 12 years as well and have not taken Synthroid in a couple years (my bad) my TSH was 40 2 weeks ago. scheduled appointment with primary physician to get back on Synthroid.
Recent CT scan of abdomen showed gall stones for which GI doc told me to maybe get a surgical consult, as this may be giving me symptoms that worsen the colitis. (Whatever…..I am not going for surgical consult, my symptoms are the same as they have been during all flare-ups)
I think it’s interesting to know what other (if any) health conditions people with UC have. There are a lot of commonalities.
Take care everyone :)
