Remicade Treatment

I was diagnosed with UC 2 years ago. I had gotten sick and was given antibiotics and then started having stomach problems. After a colonoscopy, they said it was ulcerative colitis. I went on Lialida and Prednisone and soon was back to normal. Then this march I switch jobs (stressful) and started a flare. I ran out of Lialda before the new insurance picked up. Been in a flare since. We also moved and the doc here did a colonoscopy and prescribed Remicade and Balsalazide.


I am seeing little help from the remicade (go for my 4th dose today). Have others stopped the remicade and how did that go?

I think my next step is to find a different doc.

Ulcerative Colitis Tips

The FREE iHaveUC eBook "Ulcerative Colitis Tips" is made available to all members of the 15,000 person newsletter group INSTANTLY. It is several pages of tips gathered from other people living with Ulcerative Colitis, and has ideas which can be put into action immediately. You will need to enter your email, and confirm the email address afterwards.

antibiotics, lialda, Remicade, UC

2 Responses to Remicade Treatment

  1. Catherine
    Catherine October 19, 2010 at 12:54 am #

    Hi, I had the induction program of remicade (3 doses at weeks 0, 2 and 6) and then discontinued it. I was on high doses of prednisone at the time of the first dose and was weaning off it over those 6 weeks. I had my third dose in June this year. I successfully weaned off the pred over that time and was largely symptom free for 3 months.

    I also started the SCD at the same time, but probably not as carefully as I should have because the symptoms were so well dealt with by the drugs.

    It all fell apart a couple of weeks ago, not in a big way, but some symptoms every day.

    I don’t want to talk to my Dr about it yet, because he’s pretty big on ‘just try this other drug’ and dismisses any food connection. (which probably means I should be looking for a new Dr too). So my plan is to restart the SCD (I started the intro diet 3 days ago – looking forward to adding yoghurt to breakfast tomorrow) and talk to my Dr in a few weeks if I’m not feeling much better, and sooner if I keep getting worse.

    Not really sure what I’m trying to say about stopping the remicade – it seemed to work for me though, so quite a different situation to you. I’ve had a bunch of things that didn’t seem to do much – mesalimine enaemas which I was put on when first diagnosed, which did nothing except give me even worse cramps whcih I stopped after a few weeks, mesalimine granules which did nothing but I’m still on the max dose, Azathioprine which didn’t have long enough to work (before I went back on massive doses of pred) which I’m also still on. My Dr didn’t want to change the meds the last time I spoke to him because everything was holding together for the first time on months, but all going well with SCD, I’ll talk to him about reducing doses later this year.

    I can’t see any reason to be on drugs if they aren’t doing anything. Annd my understanding is the remicade is meant to work pretty fast – the nurses where I was getting it said people often see improvements from a single does.

    All the best

  2. Milka October 19, 2010 at 6:53 am #

    Dont stop the treatment if you can. I know when I started it got better after 6th treatment. And actually I have been on it since last nov and I have really felt “normal” (and I use that word lightly) since June. So If you are finding some relief stick it out a little bit longer and see. I know its expensive and hard on the system but if it works…to me anything is worth it! Good luck!

Leave a Reply