Remicade Treatment Round #2

Introduction:

My name is Kyle. I dwell from the wonderful apple state of Washington. Down with team UC since July 2012, posted my story on the site, Joined Team UC in July…World Rocked in August!. I am a sold out servant of Jesus Christ. I still have the most amazing wife in the world. I am a teacher, I Love to read, play hoops, and am currently #1 in my fantasy football league, Team Name: Remicade Renegade : )

Current Colitis Symptoms:

Still currently experiencing a tightness/cramps in the GI, energy level is up and down, also have knee aches every day (could be a result of tapering off prednisone), feet are achey as well.

Second Remicade Treatment:

8 a.m. but I have already been up for 2 hours, well 1 hour and 46 minutes, alarm went off at 6:14 am. I just get so excited for my Remicade mornings, my wife doesn’t appreciate my perkiness at 6 in the morning but come’on it’s REMICADE DAY!

To the hospital infusion center back again for round #2 of my Remicade Infusion. Things went much the same as the previous time, great care, comfy care and of course lunch provided : ) I can’t say that things have changed significantly from the last time I got my “Remi” infusion but I can say that things have definitely not gotten any worse for me. The infusion was a little shorter this time as I am now feeling more like a Remicade Vetran than rookie. During the infusion I got a little cold, warm blanket did the trick to fix that. Other than that I was able to go into work later in the afternoon for 2 hours. The following day I did feel a little fatigued but nothing too extreme, made sure to stay VERY VERY hydrated the day before, day of, and day after, that helped keep any type of headache down.

Believe it or not I was a groomsmen in a wedding that afternoon, didn’t get my dance on too heavy at the reception, knees and feet are still bothering me, but I was able to share a couple slow dances with my wife, oh and I got down to the Black Eyed Peas for a fast one, but you got to right?

My GI has told me that it usually takes 3 hits of the “remi” for you to get the full effect, so right now as I said above I am still experiencing the wonderful tightness in the GI area. Diet is pretty normal and am having normal solid BM’s each day, usually 1-3 depending on the food intake from the day.

But I know the million dollar question is “What was my lunch for my Remicade day?” Well I ordered myself some baked salmon along with some peas and an apple, however they mixed my apple up for an orange : ( It was a nice little afternoon lunch with my wife. She got the fish and chips : )

I am thinking so far so good with the Remicade, things seem to be going very smooth and good with the treatments, so I am not complaining one bit and am looking forward to the next infusion. I look forward to sharing my Remicade experience with all you UCer’s out there!

For those of you Remites out there:

• When did you start to notice a significant change?

• What was the biggest change you noticed from Remicade treatments?

• Any thing I should be aware of as I stay on Remicade?

• Have any of you tried SC diet along with Remicade? Thoughts? Success? Worth it?

Where I’d like to be in 1 year:

Love to see the UC put in a state of remission, have a “FULL” time teaching contract, and doing whatever the Lord is leading me to do in my life!

Colitis Medications:

Down to 1 lialda pill a day, 20 mg of prednisone a day (tapering off 5 mg every two weeks), still ballin’ out of control with the moonface, but my wife is happy my emotional swings have dropped off as I go down on preddy, still having a “tearfest” at least twice a week : ) , probiotic in the morning and at night, and a multivitamin.

written by Kyle

submitted in the colitis venting area