Remicade ( or “Infliximab” as some might call it) is a relatively new medication first approved for Crohn’s Disease in 1998 that sometimes is used to treat ulcerative colitis patients who are not responding to other medications. Remicade is an artificial antibody, and its use has been approved by the FDA for treating other autoimmune diseases such as Crohn’s Disease, Psoriasis, Psoriatic Arthritis, in addition to ulcerative colitis.
People who decide to use Remicade receive the medication through infusions typically at a hospital or infusion center. The entire infusion process can take anywhere from 2-4 hours.
Wikipedia about Remicade/Infliximab:
Remicade patient assistance program : Help Paying for Remicade/infliximab
Remicade side effects can be found on the medication side effects database here.
If you have used/use Remicade to treat your UC, please feel free to submit a review on your experience and rating of the medication below.
Submit your review
I'd like to give this drug 5 stars as it did save my life and my colon. I've been on it for about 3 years. It took an intervention but I when I went on it I was someone who had Ulcerative colitis near entire life and this hospitalization was my second and near death only this time nothing was working (any of the drugs including prednisone). I immediately went into remission. Like infusion #1 the hemmoraging in my colon ceased! It was like a miracle! However! Here I am three years later and I am experiencing the WORST IMAGINABLE joint and muscle pain, dull headaches, fatigue, and with that depressed af. I'm athletic and always have been and I'm slowing giving up anything I really enjoyed doing recreation wise because my body is killing me. It is worse for 2-3 after infusion and then just reaches a baseline of mild hell until my next. I get the minimum dose of 5mg every 8 weeks. In additionally I've suffered with some very weird face rashes, one diagnosed as staph which I've never in life had, some mouth sores inside on cheeks and tongue also not common for me, and also whether age related or not my eyesight went from near 20/20 to horrible in just a matter of months in the last year. My quality of life is decreasing rapidly. I've been searching for answers or alternatives. My dr as most doesn't give much help..they just want to keep you where you are at because you are in remission. Lastly the above is just my daily life degrading I should also point to all the reasons not to be on this drug. The side effects and warnings are insane yet they give this out like candy! Why aren't more doctors talking about the use of LDN or other therapies. Oh yeah MONEY. So sad.
I have been on remicade since 2015. And it has helped me have a normal life.
Remicade initially worked for me after the first infusion. After the second infusion, I started having severe joint pain (which I thought was actually a groin pull at the time). After my third infusion, I had debilitating joint pain all over my body to the point where my husband had to carry me up and down the steps. This confirmed that what I thought was a groin pull after my second infusion was actually joint pain. Besides this horrible joint pain, I also developed a red rash around my mouth and my skin (especially my back) was itchy. The medication costs a significant amount of money. I recently learned that I have developed antibodies to the medicine although I would not take it again anyways based on the side effects.
In 2016, I was put on Remicade during an emergency hospital stay. I was so bad off if I had waited another day I wouldn’t be writing this review. It worked and by 6 months I was in remission and stayed there. Off and on during the first two years I would notice I’d have fatigue and aches and pains a week before my infusion. It was stated that was normal and maybe Remicade level increase likely. By the start of my third year, I became incapacitated with severe pain in joints, muscles, and tendons. Physically I was a mess and then mentally with anxiety, depression. Only a very high temperature indicating for me inflammation was raging brought me my second hospital stay in 2019. The diagnosis drug induced lupus. A side effect only a very small portion of IBD patients experience. Not a category I wish to ever be in again. 6 months after being Remicade free, lupus symptoms have disappeared. Granted Remicade was the sledgehammer to the penny nail to eradicate my flare and help heal my colon yet it was the worse thing for my body. Lesson for others , please be your advocate and review side effects even the rare ones.
Oh and through all this experience my colon stayed in remission. I’m currently on a course with Entyvio.
Its an awesome drug thatworked wonders for my uc. It kept it in check. But....now Im being FORCED by the insurance co to do have it done at home.
I live alone and i feel vunerable. My drs only ever gave me asacol/predsione and imuran. When they didnt work they didnt want to see me anymore.
Why didnt they give me a diet plan?? Why does the drug cost $88,000???
But yes I do well on it for over ten yrs. In 48hrs my stomach stops rumbling
After working for around a year it stopped working.
My immune system started eating it. It was great while it worked though. Even if the infusion took 6 hours cause of the side effects.
I have been on a Remicade infusion every 8 weeks for 8 years and it literally saved my life. My only other alternative was colon removal as none of the other medications provided any relief. Occasionally I will have a very mild flare-up but I can usually associate it with something I ate. So thankful for this medication.
Was on Remicade for a number of years with it helping some.My body was processing the drug too quickly so infusions were shortened to 6 weeks. Still using the drug up early so quantity was increased.Did not feel the best after first increased treatment for several days. Several days after 2nd treatment thought I was having angina,turned out to be a heart incident with heart rate over 190 bbm with subsequent heart damage . Many trips to Emerg and 5 days in CCU I'm trying to get better but is going to be a long haul. Doing research ,with my heart condition I probably should have been switched to another drug instead of increased remicade.Have had 3 previous heart attacks over 20 plus years before this incident. Started Entyvio last week and my fingers are crossed. To be truthfull scares the heck out of me
I started Remicade immediately after a flare forced a cancelation of a trip to Europe 4 years ago. Whether it was the Remicade or the requisite benadryl that is administered before the infusion, it was effective within 48 hours and has been effective ever since. I'm of the belief that flares occurred with me because of stress. During my first infusion 4 years ago, I experienced relief from the UC symptoms immediately after the dose of benadryl.
I have been on Infliximab/Remicade for four infusions so far and it’s been helping me. Although I had a lot of stress last month so my colon has flared a little as I wasn’t being consistent with my diet too and I took up smoking for a week after a family member died suddenly. But the side effects for me have been severe itching mainly on my back and small bumps over my body. But that was only for the first three treatments. Now it seems to have calmed down a lot. I’ve also got two infections in my gums so have to have two teeth removed. But that might just be an aside. Otherwise I have been able to work fully and do as much as I need to survive.
I’ve noticed a massive increase in my sex drive, from nothing to finally being able to feel like I want to have a sex life again, whether that’s just since having an iron infusion and I have more energy back I don’t know. But it’s a very welcome side effect. All in all I say go for it. It’s given me my life back again. So I highly recommend.
I started site shortly after being diagnosed in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
I’ve written 2 different ulcerative colitis ebooks, you can check them out here.
And, the Free eNewsletter, which has important updates can be joined here.