I’m a 41 year old female recently diagnosed with Ulcerative Colitis
Last year in September, 2010 after a long stay in the hospital I was diagnosed with ulcerative colitis.
Up until my very late 30s early 40’s I lead a very healthy normal life.
Years after having my first child I started to suddenly develop irregular symptoms. I drank some bad water sold by a major water company that was contaminated with a cleaning solution and my health plummeted shortly after that. I finally have my colitis under control…although I am in minor flare right now. I have eliminated all the foods that I have been told to eliminate and things are much better! I take medicine on a regular basis, but I don’t take it all the time because I am concerned about all the effects of taking so much medicine. I take it when I feel I need it and that’s been working for me very well. Of course, I do not recommend that other people stop taking their medicine.
Last year I lost a large amount of my hair. I would say 80-90% of it. I never thought I would have thick hair again. Luckily, it is growing back and thick again…it is just shorter than it used to be. I lost a whole lot of weight, but did a good job at gaining it all back. Actually, I definitely need to lose some weight now :)! Doctors that I meet are surprised I have UC because I am not that skinny. I definitely looked like I had UC after my hospitalization last year.
Having UC has changed life for me.
I don’t eat anything that I am not supposed to. Well, I cannot tell a lie…sometimes I do, but very rarely. I miss coffee. I was a big coffee drinker. Sometimes I ask my friends if I can take a whiff of their coffee because I miss the aroma so badly. What I miss most about coffee is the perk it gave me when I need it. I can’t have a coffee for that extra energy I need throughout the day, so I feel much more lethargic at times than I used to. Just wondering if anyone has come with a good coffee alternative for extra energy that is often needed throughout the day.
Also, I know how bad smoking is for someone. I have been a non-smoker all my life….I now on a very rare occasion puff a cigarette and find that it works wonders. Again, I said occasional cigarette. There was one occasion I was out with a friend while in a major UC flare…I had not yet been diagnosed, but I now know it was UC. In any event, this occasion I needed no medical intervention and things just cleared up on their own. For months I was trying to figure out why going out that particular night resolved my UC. Could it have been the fried pickles I ordered? I thought maybe it was, but I now know it was because I was in a room with second hand smoke. All other times I had not been exposed to second hand cigarette smoke. Cigarettes seems to lessen the symptoms with flares. Have any of you experimented with cigarette smoking during a flare? Just curious. Again, I only smoke occasionally as nicotine is extremely addicting and I do not want to become a smoker.
Well, I am in a very minor flare at the moment. I am taking my medicine regularly. I don’t want to go back on steroids after hearing all the horror stories. I can’t wait until things get back to normally. Hopefully, they will on their own and without steroids. In any event, I am happy with the state of events right now….”going” once or twice a day is great instead of 20-30 times a day. Every day is a new day for me!
I have taken control of my life by learning what I can eat and what I can’t. By keeping it simple, I am living a basically healthy life now. I keep an optimistic attitude and will do everything to keep the ulcerative colitis at bay.
I am a full-time freelance writer now. I am going to be working from home for the rest of my life I am sure.
I wish you all a healthy and happy life. I’d love to communicate with others who suffer with this horrible disease.
My current medications: Mesalamine
Submitted by: “I’m in Charge Now”