I have Ulcerative Colitis and have had it for 6 years. I am currently taking remicade infusions. I feel so worn out-completely exhausted after the infusions. I was wondering in there are others who feel out of breath tired after this medication. This last infusion I received 3 days ago..and the first day I slept 16 hours..I normally feel tired, but never this tired. Any input is greatly appreciated.
Do you take Remicade, if so for how long and did you have any long term side effects from this drug. I feel like I have no options at this present time. Steroids don’t work for me anymore :( Humira isn’t approved for UC by my insurance. On the upside…I am thankful for this website…its nice knowing others understand…I have one friend with crohns, but most of my friends and family can’t understand all the ups and downs of this disease.