I was diagnosed with ulcerated colitis in August of 2011.
The doctor who diagnosed me prescribed the wrong type of medicine. My colitis is in my transverse colon. The medication he prescribed would never have reached the area that has colitis. The doctor diagnosed me after a colonoscopy, prescribed the medication, and told me to make an appointment with him in three months. He gave me no other information. No information about diet what to look for etc. He told me this as I was awakening from the anesthesia for my colonoscopy. My symptoms became progressively worse. I went from having three BM’s a day to having 30 or 40. I have been out of work since the end of October of this year.
I did connect with a new, kind, considerate GI doctor. I have tried the specific carbohydrate diet. I have been on it since about November 28, 2011. At first my symptoms started to get better after several days I was going perhaps 6 to 8 times a day, I am now having to go to the bathroom 10 to 15 or more times a day. My iron levels are incredibly low, I’m constantly tired, rundown, and chilled. I am on prednisone and Lialda. My new G.I. Dr. is weaning me off the prednisone. I now take only one 10 MG pill a day. If the diarrhea would slow down he would lower that does. I need to go back to work. I am running out of sick time. I hate being home stuck in the house all day.
But the specific carbohydrate diet does not seem to be working for me.
I am uncertain if it is because I still use some honey, or if the diet just is not going to work for me.
My doctor is not a believer in the diet.
I also have seriously considered going back to smoking. I quit smoking cigarettes in November of 2010. I started showing symptoms of colitis, I did not realize at the time, in the spring of 2010. I have read many stories with people who have started smoking again have had their colitis go into remission. My belief is I would rather have quality of life and be sick perhaps for the last five years or so then to suffer and be unable to work and or leave my house for the next 20 – 25 years. Any advice or direction or information that may help put this horrible illness/flare-up into remission would be greatly appreciated. Thank you in advance for any suggestions or help give me.
written by Patty
submitted in the Colitis Venting Area