Hi, my name is Irma. I was diagnosed with Ulcerative Colitis in September 2010. Since then i’ve already been hospitalized three times. Unfortunately, I wasn’t responding to Asacol, or Pentesa. Finally my doctor put me on Asacol and it seems to be working, Well, I think since this morning I started having bleeding with no diarrhea.
Irma’s Colitis Story:
Well first of all I am glad to say that I am not embarrassed of having this disease. I like to inform people of what UC is, only because I believe information is a major factor of finding resources and possibly (God willing) a Cure for any UC or any disease.
My first doctor told me that I would be on Prednizone for life. At that time I couldn’t even pronounce Ulcerative Collitis (ESL) :) but for some reason I didn’t trust the Prednizone or my doctor. I started research online and found this amazing website. I found out about the SCD diet and have been following it religiously. I also found a new doctor who seemed to be on the same page, and wants me off the prednizone (yeppiee). Sadly, I am just not able to control my stress level. I want to start Yoga but I need a little bit more motivation. One of my stressor is the hair loss associated with this disease, so if any of you can give me any Information on that I’d really appreciate it. I had a tonsillectomy two years ago, and when I was diagnosed, I wondered if it had anything to do with me having UC since tonsils are a part of your immune system and UC is an autoimmune disease???? Please comment! Also I read somewhere that having scoliosis (which just means that my back bone is a little crooked) can also contribute to Ulcerative Colitis, which sounds really weird but I have a curios mind :) so please comment on that as well. Well I wish you all well, My Love and Prayers go out to all of us struggling with this disease please take care.
Asacol 4 two times a day (hopefully soon, none after I kick this freakin disease to the curb with the SCD diet one day)
10 mg prednizone (tapering)
oh, and a BIG bottle of HOPE! You have to make your own :)