Over It

Intro:

Hi, my name is Zach from Sydney. I was diagnosed with Ulcerative Colitis when I was 18 yrs old. I am turning 25 this year and have had enough!

Symptoms:

Urgency is my main problem at the moment.

Over It:

I was diagnosed with UC when I was 18 years old, and am turning 25 this year. Throughout this time I have tried close to every medication with very little success. Throughout my time I think I had a good 3 month period. I have gone through numerous medications ranging from salofalk, enemas, imuran, dipentum, mezavant, methotrexate, just to name a few. Imuran worked well for a while for me, until i guess i became ‘immune to imuran’ haha. So that drug was thrown out the door and I moved onto others. The main thing I am worried about is the urgency I have in the morning. I have close to no control in the mornings, and am completely worried about where the closest bathroom is and whether it will be accessible to me. It has limited me to not doing anything in the morning for years, not going on public transport, not going in cars with other people and continually making excuses to my friends and work mates. I haven’t told many friends and work mates about my UC. I just make excuses. I was playing Rugby with bright prospects, I tried my hardest to keep playing during my late teens and early twenties but I just couldn’t handle it. My team mates just decided to think that I was lazy and didn’t want to be part of a team anymore. Which is completely not the case, as this was my favourite thing to do in my life, play rugby and be part of a team. I’ve decided that this is not a life I think i deserve. I’ve come to the decision that surgery is my last alternative, although I am packing it and really scared and nervous.

If there is anyone that can write to me,

who has had the surgery and have experienced it

I would be really appreciative.

Colitis Medications:

Currently I am on Methotrexate and Mezavant. They work sometimes, sometimes not. Very powerful drugs that have serious side effects

written by Zach

submitted in the Colitis Venting Area




urgency

4 Responses to Over It

  1. Brookesy February 28, 2012 at 9:44 pm #

    Hey mate!
    I know exactly how you feel! I’m turning 25 this year and I’m in Sydney to. I was only diagnosed with UC back in July 2011, but it was so severe I ended up getting an emergency total colectomy about 3 months later in September. I’m now on the bag for the moment and will be having the second surgery to form a J pouch around May this year. 

    Mate if I had have know just how much better I feel now back when I first got sick I would have chosen to go surgery before I started meds. 
    I basically have my old life back. I don’t have to constantly look for a bathroom, I eat anything and not worry if it’s going to cause a flare up, I’m back at work as an aircraft engineer for the Police Airwing, hell i even conceived my first child while on this bag haha. 

    I used to play tournament paintball a lot just before I got sick, but iv just put a hold on that for the moment till after the final take down surgery and every thing has settled. You will probably have to do the same with rugby while your on a bag, being full contact and all. But on a J pouch you can do almost anything. Have a look at Curtis’s stories on here. He’s been through the whole deal and is now back playing soccer again. There is even a huge hulk looking bloke on YouTube lifting a missive amount of weight, and he’s on a J pouch! 

    If you have some more questions I’m more than happy to help out!

    • Kim March 2, 2012 at 7:56 am #

      So you guys both had the JPouch surgery? I’m going for a consultation this month. Could you tell me exactly how the 1st year was? Did you get pouchitis?

  2. Zach February 29, 2012 at 2:29 am #

    Hi mate, thanks for the reply. Seems like you’ve gone through a heap quite quickly. Yeah mate I’ve got some questions. Do you have an email? maybe email me first at zacharytunbridge@hotmail.com if you don’t want your email on here! thanks mate!

  3. Zach March 4, 2012 at 6:29 am #

    hi kim, neither of us have had the j pouch surgery. I haven’t had any surgery yet! Im planning on it in the very near future!

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