New To Ulcerative Colitis and Having Concerns about Diet and Recovery

So I was just recently diagnosed with this but i have been dealing with going to the bathroom 25+ times a day for about 2 months (always with a ton of blood) and i didn’t go to the doctor till one day that i felt like i was gonna pass out.  I was hospitalized (sadly over Christmas eve, Christmas and a bit of time after) had a colonoscopy and was diagnosed with ulcerative colitis.

One of my concerns has been that my doctor didn’t put me on a diet AT ALL
. I asked him when he was giving me the news what i should eat or shouldn’t eat, and he just told me to avoid dairy for 4 days but that its no biggy. Ive taken it in my own hands to try to find a diet that works. I noticed meats aren’t wonderful for me so i havn’t been eating meats, i’ve been eating a ton of veggie, jello occasionally.. chicken and veggy soup, but thats about it. I find that sooo many foods are aggravating to my stomach. Lately ive been paying more attention to whats good or not and any sort of rice, bread, tortilla, pasta-y things don’t work well or spicy stuff, and potato things so i feel like i don’t know what to eat. But since I’m not eating right or nearly enough as before, plus dealing with anemia and school (im a high school junior girl) i am constantly hungry. Could that be from the steroids too?

I am wondering if anyone has any tips on things that i can eat or things i should avoid and such too because I’m dying for my flair up to go away to be able to at least kinda enjoy eating again. At the moment tho im afraid to eat practically anything

Another thing, ever since I’ve been put on medication and have been out of the hospital i go to the bathroom a TON less BUT now sometimes there’s soooooo much mucus, is that a bad sign? (sorry for too much details) but there will be like what seems to be chunks of mucus with blood like more then before (not more blood just more mucus, the blood has significantly gone down). Should i be concerned about this? Of course I’m going to ask my doctor about it as i have an appointment with him this Friday but im just curious.

The mucus really freaked me out because at first i thought that it meant maybe my meds aren’t getting to me, but then again I’m going to the bathroom far less frequently. Its like I’m going 2 steps foward, 1 step back. Has anyone else been through this?

thanks to anyone who answers :) and sorry if this was kinda long

Current Medications:

At the moment i am on 6 asacol pills a day, 20 mg of predsinone, and protonix and iron suppliments

8 thoughts on “New To Ulcerative Colitis and Having Concerns about Diet and Recovery”

  1. Hi there!
    Sorry that you are going througha a rough time. I have been through my own rough time, so I can sympathise with you.
    As for your doctors not saying anything about DIET….get use to that. I’ve had UC for 6 yrs and not one DR. has told me that diet has anything to do with it. Which is total crap. But I would get tested for a Gluten intolerance (Celiacs Disease…blood test) It def cld be something that can contribute to it.

    As for the Iron supplement, it actually sent me into another flare when I took it. I was a mess, its very hard on your digestive tract. So ask your doctor if you can put off the supplement until after your flare calms down. The last thing you need is to have something aggrivation everything.

    As for the steroid, you will def. be hungry….hungrier than you’ve ever been. I use to clean and organize at 3am just bc I was up and to stop myself from eating.

    It is a long process to get back to normal (whatever normal is) I am still on the road to recovery and its been 7months….so don’t be surprised if it takes longer than you think. But you will be fine. If you haven’t done so, look into the SCD Diet, I am sure you have seen some of the literature on this web site….it has helped me tremendously!

    Last thing, mucus can be bad, but if you are just coming out of a flare it could be your bodygetting rid of all the bad stuff. If the mucus continues I wld def. say something. Sometimes you will find being on the Diet that the mucus goes away bc you are eating such wholesome foods. Sometimes those carbs can be awful for your digestive tract.

    Good luck, my prayers are with you.

    1. I am not sure whether i am diagnosed or not, but was put on saloflax for colitis and grohn’s. I found that eating a banana with every meal first helped. i am dairy and soy allergic, and i don’t touch wheat or anything with gluten. brown rice became my main meal source. i am experimenting right now with certain veggies. carrots bother my stomach immediatly. squash is good and i had beets. i learned to eat differenly by going by heathers diet for ibs. i am only able to eat chicken right now. good luck.

  2. I have been diagnosed with UC in June 2010 and had two bad flare ups since then. I am still working on getting the last one into remission.
    As for the diet (as this is what I have experienced and works for me), stay away from fiber (veggies, salad, fruit, nuts, corn, etc). Make sure to check the labels on everything you eat and try to stay under 1g of fiber and limit your total daily intake to less than 13-16g. Drink a lot of water, and I mean a lot. It really has a calming impact on my issue.
    The mucus is normal after a flare up that you just experienced, and you might see that for a few weeks.
    I am surprised that meats and potatoes are an issue. I eat a lot of beef, chicken, turkey with backed potatoes and white (overcooked) rice.
    Now these things seem to get boring after a while, but you need to keep in mind, if you eat the wrong thing, your punishment will be right there.
    Due to the fect that I also developed enteropathic arthrithis as was imobilized for about 6 weeks, I have started my treatment with Humira 2 weeks ago with 4 shots, 2 shots yesterday and now go on my regular cyclce of 1 shot every 2 weeks. The arthithis is mostly under control, but I still have a lot of movements during the evening and night, but have 5-7 hour periods of nothing during the day, which allows me to function again.
    Hopefully this gives you a better understanding of what is happening and I wish you the best of luck. It just take a lot of time and patience to keep on going, but remission is just around the corner…:)))

    1. Everything you said is all too familiar for me. I was diagnosed in August with UC but was suffering from symptoms for several months before I saw a doctor. It started with a lot mucus the same as you and just escalated from there, the constant going to the bathroom and the blood is pretty freaky. I am still in the process of trying to get a current flare up under control and it’s been about 7 months with no luck. Steroids seemed to help at first but just haven’t been able to completely clear it up…so I have been on Asacol HD and prednisone for a while now. The side effects of the prednisone is not the most pleasant, the constant wanting to eat really sucks. Same with my doctor, he never really said what I should or shouldn’t eat…and it’s hard to tell what foods are upsetting at times. I have noticed that soups or broth and also bananas and yogurt tend to calm my stomach down.. salads and nuts and beans tend to not be so good. I honestly think every single person is a completely different story and it just takes time to figure out what is going to be best for your body. I have an appointment to see a GI in a week and I hoping he will be able to provide more answers for me than my family doctor so I can start to see the light at the end of the tunnel so to speak. If you haven’t already you may want to consider getting a referral to a GI and also maybe a nutritionist to help with your diet. I know it might seem like no one has the answers you are looking for, but I think just knowing that there are people who are going through the same thing as you and knowing someone understands can help. Good luck on your road to recovery :)

  3. Hi there, I’ve had UC for just over a year, and have been treating it with lots of drugs with little success and SCD, with much more success. I like the idea of being able to treat it with diet alone, but I get the impression it is going to take a while to persuade my doctor. We’re gradually reducing my drugs, and I’m reducing them a bit more without him knowing, because I know the diet it helping. If you are finding what you are doing helps, stick with it. But I agree with what people have said about it being difficult to pinpoint what is a problem and the only way to get around that is going with a very minimal diet and phasing in foods and seeing what happens.

    scdlifestyle is a great resource, and they have a free book chapter on getting started on SCD, which is really worth a read.

    The other thing I’ve found while sticking to SCD is I feel much better when I don’t have much fruit, dried fruit or nuts – I limit myself to 2 pieces of fruit, and one small portion of dried fruit and nuts a day. At the moment, I’m eating no dried fruit or nuts at all to recover from the Christmas binge.

    There are lots of great resources out there, but the most important piece of advice I can give you is to keep a food diary. Everyone seems to respond differently (eg I can’t eat beetroot at all at the moment) so you need to find out what works for you. Also, calorie counting is a good idea to start with if you do SCD, to make sure that you are eating enough – carbs make up so much of a calorie intake and vegetables just can’t make that up.

    Good luck,


  4. I’ve had uc for almost 4 years. Flare ups every summer followed by a loss of 15 to 20 lbs. my doctor and I always use prednisone and Imuran to curb my symptoms. Always seem to have good luck with that treatment. Also eat yogurt, take multivitamins, and just try to manage stress by not worrying so much. Hope this helps everyone

  5. Hi there,

    I hope your all well.

    First of all you need a low fibre diet, stay away from citrus fruit, nuts, drinks which are high in caffeine (especially Hot drinks), spicy food and most veggies especially greens (spinach, Brockley etc). Try having white bread, white rice, chicken and fish.

    The following herbal medicine works amazingly for colitis (ALOE M.P PLUS). Take this with your normal medication and you’ll definitely see a difference. It really worked for me and the doctors were amazed with the results.

    I hope this helps


  6. It seems a bit off the wall, but if you get a juicer and juice a half a cabbage and a full beet and some apples (to ease the taste) for three days, you will see a tremendous difference in your UC. Do it for two weeks, and I’d be surprised if you had more than 1 bm in a day. Lots of good science and personal experience backs up the use of these to change the microbiome in the gut, which is the only way colitis can be cured.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.