24 Female, Diagnosed March 2013 after 8 months of horrible symptoms. First and last colonoscopy March 2013 . I am learning to deal and cope but would love to know more natural ways to control or minimize my symptoms.
Some more about me:
I am a hard working caring person . Very family and friend oriented. I’m pretty much an open book with those I’m close too so it’s no secret I have UC. Especially after excusing yourself to the bathroom 5 times in 1hr gets pretty obvious.
My Symptoms of Colitis:
Frequent bathroom trips, bloating, cramping, mucus, blood, diarrhea, fatigue, dehydration.
New to Colitis – I Hate Public Bathrooms
My story did start to long ago but I feel like I’ve had it forever. Began getting symptoms early last year lots of blood and cramping, unbelievable cramping mostly nights and mornings. I didn’t want to eat because I didn’t want to go to the bathroom anymore , I didn’t want to go out because I was afraid to embarrass myself . One thing to note is I hate public bathrooms. Now I have no choice and I can make friends with just about any toilet. When mucus and tissue with pools of blood (sorry for being graphic) started to come out I made a GI appointment . With my HMO it took me two months to finally get the colonoscopy to which I was diagnosed with ulcerative colitis. I was put on Asacol after a month I started felling better so I stopped taking it .
Just a month ago it came back with a vengeance . I have missed work and left early just because I can’t sit in pain and keep getting up . Luckily I guess, my supervisor has similar issues and is very understanding. It’s summer time and I’m constantly dehydrated but I refuse to stay in doors and miss my summer. I’m surrounded by amazing friends and family so I just decided to tell everyone and get it over with. It’s made things easier people don’t have to keep asking what’s wrong , now they just know and ask me if I need anything.
I am on dezicol now and been feeling a little better. What I’m afraid of is dating again . I’m newly unattached and my previous boyfriend was very understanding. Now I’m just worried if I go on a date in the future where’s the bathroom what if I’m in there too long what will that person think ? As much as I’m learning not to be embarrassed about my UC I still do worry . I also worry about my medication not being strong enough and taking steroids or having a part of my colon removed or even cancer. I don’t want to be on medication forever I want to know if there is anything natural I can do ? I try to eat healthier stay away from foods that upset me and exercise moderately . I want to try juicing I’ve been researching online but want to know if anyone has done it , is it more harmful? How did it take to your body ? What helps you that might help me ? I’m open to anything I just want to make my life easier with this.
I truly am inspired by other UCer posts and I’m comforted that I’m not alone. I never heard of UC before I was diagnosed and thought no one would know how I feel . I’m happy to have found this site . Hope everyone put there stays positive and is doing well !
written by Nik
submitted in the colitis venting area