I am a 25 year old mother to two boys ages 5 and 2 and a wife to a soldier about to deploy. I was diagnosed with moderate uc in April 2011. I feel like this disease has taken over my life and I am constantly in and out of the hospital.
Loose stool with blood and mucus, constant cramping on my left side, nausea, vomiting, hot flashes and night sweats, extreme fatigue.
I was hospitalized for horrible stomachs pain and bloody stool in April 2011 which lead to a colonoscopy and my diagnosis. I was also diagnosed with blastocystis homynus and treated for that. Since then I have been hospitalized six times for flare ups. I am constantly on and off of prednisone with horrible side effects and I am constantly in pain. I have consistent cramping and get horrible sharp pains on my left side. I see a gi specialist monthly to try and get my flares under control but I haven’t been in remission since I was diagnosed. I feel like this disease has taken over my life, I don’t have the energy to do the things I enjoy anymore, this isn’t fair to my children or husband. I have two little boys full of happiness and energy and I want my life back so I can be the mommy I used to be. I am constantly nauseous and in pain, I get horrible hot flashes and night sweats and chills, and I am always so tired.
I am currently having a bad flare up that has me running to the bathroom about ten times a day along with vomiting and hot flashes. I am also having burning lower back pain and the same thing with my knees. The prednisone is no longer helping and the azathioprine is obviously not working since I have been in the hospital four times in the past three months for flare ups. Any suggestions on new meds?
And is anyone else in constant pain? I feel like I am never going to feel healthy again, this disease is really kicking my butt! I have myself on a low residue diet and I don’t touch alcohol caffiene or nicotine. I also do stress release yoga and meditation daily but nothing seems to be making a difference on my health.
Where I’d like to be in 1 year:
Back in school for my RN license and I want my energy back!
Currently on 60mg predisone, 200mg azathioprine, flagil, rowasa enamas, hydrocodon, zoloft, and provigil.
written by Melissa