I am a 21 year old student from Ontario. I have had colitis for 11 years, but has been pretty well controlled with medication until lately.
Some more about me:
I am a student struggling to keep up in school with all of my colitis which often seems to get in the way. I enjoy spending time with my friends and family and being active.
loose stools, nausea, joint pain, and severe stomach pain.
Never Ending Colitis Flare
I have had colitis for 11 years now, and which age things seem to be getting worse. I have been on remicade for 4 years, but recently it hasn’t been working. Scopes reveal that my colon doesn’t look to bad off, yet I am having all of the symptoms of a flare.Everyone is stumped. I am considering having surgery because this disease has limited me in every aspect of my life. I have been dealing with these symptoms since December, and nothing seems to control them. I have severe stomach pain which leaves me in tears and doubled over. It is so debilitating that it limits my ability to go out.When this happens, I get the vommitting, and cannot keep anything down.The pain seems to get worse right after I go to the bathroom. I constantly end up in hospital, but there is no long term solution that anyone has come up with. My doctor feels i’m becoming steroid dependant as every time i wean off of them my symptoms come back. I have been on asocol which stopped working, and them immuran which I developed an allergic reaction to. When I started the remicade it was like magic and relieved my symptoms right away with barely any side effects. Now it seems like whenever I go to the emergency room they either don’t believe me, or tell me there isn’t much they can do to help. I get sent home, then am back soon after as the pain is so severe and I cannot seem to keep much down and am dehydrated. It seems most doctors either have a lack of knowledge, or sympathy to someone dealing with a chronic condition and so much pain. Has anyone else had this severe pain that was persistent and if so how did you deal with it long term? I feel that i need a solution until I can have surgery.
remicade infusions, 40mg prednisone, probiotics, omega, iron
written by Brittany
submitted in the colitis venting area