I was diagnosed with ulcerative colitis on my 15 birth day and at first I had blood and mucus for about a month.
Then I went to the doctor but it was too late, I had become severely dehydrated and fainted. I was transported to a hospital and was diagnosed with UC. At first the doctor gave me salofalk, and it made me worse and and I stopped it. Then my doctor gave me prednisone which game me a big relief and it saved my life. I am a young kid and I didn’t care about the side effects a lot because it was healing me. But as soon as I got off the prednisone the symptoms came back, my doctor put me on a bunch of medicine that was bad and nothing worked. I have only been in remission when I’m on the steroids. Two months later i got dehydrated and fainted in the x ray room it was the weirdest feeling i ever felt and i want to tell everyone because its so strange. Anyway i stayed in the hospital for 2 months as my colon was so inflamed they were about to cut my intestines out and that made me so scared and anxious. But luckily i got a miracle and was well enough to go home. I was on a big dose of prednisone 8 pills a day and I felt the side effects very clear my bones were so weak i couldn’t move or walk up the stairs anymore i felt like i was 70!. I had another flare up two months later and i stayed in hosp for 1 month this time and the doctor said surgery would be the best option but my mom said no. They sent me with prednisone 60 mg, very bad and horrible but i managed to live with it. Now I started remicade and it seems to work well for 1 week and i would get really sick again. I currently am in grade 11 but i don’t go to school because my colitis is uncontrollable and I’m always dehydrated and tired. I stopped playing sports and eating and stay home all the time I’m in the washroom every hour and i get no sleep and no rest. I’m in the washroom in the middle of the night, I’m going 9 times at worst 20 times and i have no solution. They won’t put me back on prednisone and I’m just getting closer and closer to the day i dreaded the surgery. I have been changed completely by this disease and I am worried about surgery, I wish I could be a normal kid. I have lost 2 years of my childhood and i need to get relief. Please help.
Medications: prednisone remicade methotrexate and a whole bunch
Submitted by an anonymous UC’er via the Colitis Venting Area