Hi Everyone, I’m a 51 yo female and was diagnosed with UC when I was 34. Like you all, I’ve had many ups and downs with the disease.
Ulcerative Colitis Symptoms Right Now:
Currently coming out of a flare.
Have had bleeding, loose stools, gas, cramping, bloating
I never thought I’d write but I feel I need to let others know about something that SEEMS to be working for me.
I have moderate left sided UC with proctitis. I haven’t had a flare in about 4-5 years. My flares are usually stress related which leads me to eat poorly, which leads to bad places with my UC.
My current flare started to show up with mucus in the stool- always the first sign for me – in February 2017. By the middle of June the flare was in full swing. I take Apriso daily as my maintenance med, my GI. put me on Budesonide, Canasa suppositories and Proctofoam. Nothing was working.
My MO is to usually to not eat too much when all this is going on…but that only lasts so long till I start to feel like I’m going to pass out. I know I have a problem when I consider it a victory that I ate a hard boiled egg and two saltines!
I have tried all kinds of alternative diets, and treatments, some helped some didn’t. Because I hadn’t had a flare in a while I had honestly forgotten how terrible they can be, and this one was making up for lost time!
I had had a colonoscopy in May and my GI said it was only my rectum that was inflamed. Well this was one unhappy rectum – cramping, nausea, bloody loose stool, urgency – the whole deal.
In the beginning of June my GI put me on predisone. Started at 60mg From my previous times taking it I seemed to remember it not making me feel that bad, in fact I seem to remember prednisone giving me lots of energy and feeling OK -besides the moon face…well not this time….it’s been awful.
After 2- 3 week of tapering down on the prednisone, still bloody stools, still feeling bad, urgency etc.
I started considering the aloe plant I have and whether I could just get some of that great healing stuff right into the rectum…I also thought about vitamin E…could I put a vitamin E gel tab up there? I had no idea so after quite a while searching for info. I did come across some of the vitamin E info that I’ve seen on this website and others. I was skeptical but it seemed to make sense…the inflammation is right there in the rectum..let’s get to the specific area! I read the posts from the “Sheldon guy” at curezone but was hesitant because it honestly looked a little strange.
Anyhow, I sent my hubby out for vit E- just regular ol’ NatureMade brand. I also got one of the nasal aspirator bulbs that you use to clear out a baby’s nose, and distilled water and I tried it. I followed his instructions on the curezone website of using 1 and half tlbsp of distilled water and the first night I squeezed 2 vit gel tabs into the water, sucked it into the the aspirator and inserted in my rectum. I am still on the Canasa suppositories so I also squeezed out another vit E tab on to my suppository and inserted the vit E covered suppository into the rectum. (kinda messy but I kept a towel handy). I was able to hold it all night.
Next morning, my very soft stools were BROWN. They had very little blood on them, no blood on the toilet paper.
Had the predinose suddenly started to really kick in after 3 weeks? Maybe….but the only thing that changed in my rectum’s life was the injection of the vit E at bedtime. I was amazed.
I have been using the vit E at bedtime every night for the past month….and I have gradually increased my amount to 5 tabs in the water – each gel tab is (1000 IU) and one gel tab squeezed onto the suppository. My stools have become normal sized, brown, no urgency, no cramping and down from 5-8 bathroom visits to 1-2 for the day (normal for me). There are still a few tiny streaks of blood on the stool occasionally but I am so excited at the progress I am seeing.
I have not been doing the diet on the curezone, just eating what works for me and also I don’t even think I’m taking the “best” vitamin E- I’m using the dl-alpha version which I’ve read is the synthetic Vit E and I think on the curezone website they recommend the all natural Vit E not synthetic. I didn’t buy the enema he recommended either.
The reason for pointing this out is to let others know that even though I didn’t really follow the procedures 100% I have seen really promising results.
I’m headed in for a follow up with my GI next week and I will be telling him about this, I’ll be interested to hear what he thinks.
I hope this info has been helpful to someone. I was feeling discouraged and getting concerned I’d have to go on even worse meds than prednisone.
It’s a small investment and actually kind of a pain to be doing it every night, but I’m hopeful there is really good healing going on.
I hope this helps someone else!
When I’m in non flare mode my daily med is Apriso.
I also take B Complex, iron, Vit D3 4000IU, Omega 3’s, Probiotics, Intestinew, Metamucil 2x/day
Currently coming out of a flare I am also on 15 mg prednisone, Canasa suppository at night, and Procotofoam in morning
written by Liz
submitted in the colitis venting area