My name is Adam, and I have ulcerative colitis. I was diagnosed in October of 2008, and just a few months later, actually it was January 2009, I was taking Remicade infusions to hopefully treat successfully my out of control colitis symptoms. It was one of those times where many people with UC know all too well, the last medication just wasn’t working well or at all, and it was time to go up a level on the treatments. For me that meant Remicade.
Had you told me right after I was diagnosed that I would be getting an intravenous infusion of medication to treat this new, strange, colitis disease…well, I think I would have told you to go fly a kite. But it was my time, the Prednisone, Asacol, Colazal and Sulfasalazine simply were not getting me any better. It was time for some Infliximab which is the trade name for Remicade.
Today, now about 30 months after my Remicade infusions started and ended, I thought it might be fun to make another ulcerative colitis video for the website. This time, instead of showing a cooking video in the kitchen, or some other random act, I simply decided to read out loud my gastroenterologist’s clinical notes from my March 3, 2009 office visit. This GI doctor had met with me several times, probably more like 10-15 times before this meeting, so he knew me, my wife, and my entire colitis situation very well. He’s a great gastro doctor too, and I respect much of what he stands for. Geez, I allowed him to look up my butt hole with the sigmoidoscopy equipment 3 times for someone’s sake… You must trust your doc to allow him/her to pull that one on you right?
My goal with this video, is to show to each of you who is feeling down and out, and losing sight of hope for your health, that SURELY, a healthy life is possible. I’m living proof of that. Although I was really beginning to wonder if my colon could return to functioning normally, I now know it is possible.
Our bodies are amazing things. Don’t lose sight of that. And please enjoy the video. As a brief warning, there is some tribal nudity for a few seconds here and there.
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
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