I was diagnosed with Ulcerative Colitis January of 2006, and it completely changed my life. Luckily my doctor was able to diagnose me quickly, and get me on a treatment plan. Unfortunately is consisted of 20 oral pills a day and presented little relief of my symptoms…
With the way insurance works these days, doctors can’t just put you on remicade right away, they have to exhaust all cheaper treatments first and yeild little results… but hey, remicade is expensive.
So I lived with UC, in a full force flair for over two years! Finially in June of 2008, I had my first infusion of Remicade.
Honestly, I was not nervous…I was willing to try anything, short of removing my colon! My treatment was administered at the hospital, in my G.I.’s office. They have a room deicated to remicade infusions, and a nurse who works full time administering the infusions…she is my go to for any questions I have currently.
The first time I went, compared to now, the nurse really watched my vital signs…temperature and blood pressure readings…not a big deal. Now she just does those at the beginning and the end of my treatments. My body handles the infusion just fine.
For me the time passes quickly, 3 hours from in the door to out the door. Same thing everytime. Weight (fun), temperature check, blood pressure check, I.V. line in the arm, Infusion.
I bring my laptop and watch a movie, it is actually a super ‘me’ time. It is just a part of my life now, I have to go every 7 to 8 weeks to maintain my remission. It is totally worth the time because it is the only treatment thus far that acctually worked.
So doing the math, I have done 16 infusions! I feel very fortunate to have the opportunity to get this wonderful treatment! I have my life back!!!!