Hi. I was diagnosed with UC in December 2012 after a colonoscopy because of my severe bleeding. My symptoms started a year before I saw a doctor…I was embarrassed and terrified of what might be wrong…
and I didn’t want a doctor
looking in my butt :
( It all started with mucus and then light blood and then one day I thought I had diarrhea but it was all blood. I almost fainted at the sight. I tried to heal myself through drastic measures. I did an all water fast for 30 days, zero food or juices. This turned out to be a HORRIBLE idea and no one should do this in my opinion. Finally I got so weak and delirious that my parents forced me to go to the doctor. Im thankful that they did. I needed a blood transfusion and stayed in the hospital for 5 days. When I have to go to the bathroom its urgent, like 1 minute warning urgent. I’ve had accidents more than 10 times in the past 2 months because of not having enough time to get to a bathroom. That really takes a toll on my self esteem and mental state.
Some more about me:
I’m 31 and single with out children by choice. I like being single : ) I love to get dressed, do my hair and makeup and go out with friends. I love to go to comedy clubs and I’m a major foodie. I’m a chef so Im always cooking for family and friends even though I cant eat most of what I make Lol. I love being by the water and having cocktails and laughing with friends. I like to think I’m funny, very compassionate and loving. I read about health and nutrition allllll the time. I cant say Ive been that great about following the advice I give to others.
My sisters like to randomly buy me toilet paper because its crazy how much I go through. We’ve learned to laugh at some things.
: ( 5 or 6 BM’s by noon. 8am-12noon is a very rough time for me. My BM’s are full of blood and leave me exhausted. Sometimes my hips and joints hurt so bad I have to get back in bed for hours until its better. Stretching does not help. Throughout the day I have 10 more mucus-y/blood movements which are super urgent. I have about 1 minute or less to haull a$$ to the bathroom. Ive had accidents over the past few months because I cant get to the bathroom in time which makes me really sad and frustrated.
My Butt is Ruining My Life
I use to be the life of the party, a hard worker and just always out & about doing something fun. Not any more, I feel like a MAC truck hit my life. I’m not working because I’m too weak from severe anemia and I cant stop using the bathroom. I don’t go out often because I don’t feel well and I’m nervous about bathrooms being available. I’m tired of my butt being probed!!!! My doctor sucks…he has no answers or suggestions for me. All he did was diagnose the problem and then basically I’m on my own to figure out the solution. He says diet has nothing to do with UC….WHAAAAT?!?!? Tell that to the Arugula I ate that later made my stomach feel like that alien from space balls was going to pop out of my stomach!!!!
*Currently applying for medicare and then I’ll get a new doctor*
I’m blessed in that I have a really loving family. I moved back in with my parents and they are helping me a ton! I can’t thank God enough for my family. I was not close with my family before I got sick and now here we are talking about poop…that’s LOVE! Lol
Sometimes my mom is insensitive and makes jokes about how much toilet paper I go through or that I get to nap all day. She dosen’t realize I’m not napping because I want to. I would love to go back to work and pay my own bills. I would love to only nap on Sundays because Ive had a long week and worked hard…not because my skeleton is aching like crazy.
I’m most concerned that I won’t find what makes me feel good again. That I’ll be stuck on what feels like a loser path of not working, living with my parents, being broke and frustrated with my body. Things could be worse. I thanks God that I dont have cancer or something worse.
How do you get out of your own way/negative thinking?
How do you manage to leave the house…like do you not eat for certain amount of hours beforehand?
Lialda 4 pills per day with no results/changes.
Coconut oil and mango in morning smoothies seem to help a lot. Less blood in BM’s
written by Jackie
submitted in the colitis venting area