My Biggest Concern…Being Forced to Remove My Entire Colon

Introduction:

My name is Ionuț (in English has an equal of Johnny, so call me Johnny), I’m 30 years old, work as an ATC and I have been diagnosed with UC since may-june this year even though I had The symptoms since December 2012 and it took me 5 months to convince the doctors.

Some more about me:

I from Europe, Romania, I’ve played basketball in primary school so I also do that now when I have the time, also tenis and football, i like reading, sleeping :)) ( one of the best parts of this illness, the lazy and sluggish part ), go out on walks, movies.

I am a very stubborn person so I refuse to think that I won’t be able to control my UC even though ta same point I really won’t be able :). I will still think and feel that is in my power to feel better

Symptoms:

Currently no real symptoms, just a few nidle pinches like I’ve swallowed some fish bones and they’ve reached the colon :)) and something like a rash on my skin from time to time.
Almost daily 1 stool in the morning and the weakness that follows me everywhere.

Pilot Episode

UC changed with 180 degrees my view over life itself as in what I eat, from where I eat, what do I buy and all that stuff regarding anything I put in my mouth, drive it to an obsession maybe.

Started with Elaine Gotschall SCD about 2 months ago and ended up now eating rice and bread but I will try to keep it as much as i can, it is pretty rough and you have to be careful and make up for the things you lost by keeping this diet as in vitamins and energy for your body and not get to the point where you have lost weight and energy because of the tight diet.

I really miss the feeling of not having to plan anything if i don’t have the time or if I am not in the mood and i hate the scary feeling of going out and maybe have a bite of something my girlfriend is having or some other friend or maybe drink something else than water and after that just enter a phase of blind waiting to see what happens next. In that phase your attention is oriented only upon yourself and you lose the talk between the people we went out with.

The family reacted ok after my mother cried her eyes out even though she is strong woman ( she had breast cancer 12 years ago and beat it at least until now ). And worst thing is that they live in another city about 600 km from the city i live in and also work.

My biggest concern is about having to struggle with life if i will be forced to remove my entire colon. Not afraid of anything else, like dying or getting cancer, just that and how will that affect even more my life.

Medications:

I’m on Pentasa 3/dayof 1 gr oral and 1/day of 1 gr suppositories.
Supplements: Ginsavit or Centrum as minerals and vitamins, some probiotics Redigest, Lynex, Zirfos and prebiotics Enterolactics, Vitamin C Cetebe with last longer action, Himalaya Liv 52 for liver and sea-buckthorn capsules.

written by Ionut C

submitted in the colitis venting area