I was diagnosed with Crohn’s disease 20 years ago. Three years ago, I was told I also have UC. Battling both has been a challenge, but it is what it is. I have a question for everyone out there. This is humiliating, but I trust someone out there is having a similar experience. Certain foods give me gas and it feels like eruptions going on in my intestines. It is very painful. Tums help sometimes and the heating pad works well too. I have been noticing lately that when I pass gas sometimes, liquid or mucus comes out with gas. Last night, I must have passed gas in my sleep I woke up in the middle of the night with a small wet spot on my bottom and my bed. It was mucus. So humiliating!!!! Anyone else experience this? Have you found anything to help this situation? I have been on Remicade for 2 years now, improving slowly, but not fast enough. New symptoms are showing up and not sure why. Any suggestions would be much appreciated.
Some more about me:
I love to exercise, but I’ve noticed that seems to set off a flare-up.
Joint pains, headaches, loss of appetite, bloating, diarrhea, constipation, bleeding.
Mucus When Passing Gas
I just found out recently that my hemoglobin is down to a 6.7. I had blood transfusions 4 years ago. Anyone else?
I have been lucky enough to avoid any surgeries, so I have all my intestines and rectal tract. I sometimes wonder if it would help at all. I have read all the stories of people having surgeries and still having symptoms. I cannot see going through the pain of surgery and still having symptoms. Its just crazy to me.
I pray everyday that my kids do not show any symptoms. I would feel terribly guilty if my kids had to suffer through this. They see me struggle everyday. I cannot be as active with them as I want to be, but they know I love them and that I am a fighter. They have seen me at my worst and at my best.
All oral medication has stopped working. Been on Remicade for 2 years. Feel like crap when it wears off. Get infusions every 6 weeks.
written by Debbie
submitted in the colitis venting area