MTR Test? Mediator Release Test – Any Experience?

Meet Catherine:

I was diagnosed with UC 10 months ago, after the birth of my second child. I’d dealt with digestive issues for a few years, but they became increasingly worse during each pregnancy. At the worst point, I was having up to 20 bloody and mucus filled bms per day.

Catherine on the coast!

Catherine on the coast!

Some more about her:

I love being outdoors, walking or just sitting on a park bench and reading. Food has always been a passion – While I was a student I taught myself to cook (broke and hungry will do it to you). Feeding family, neighbors and friends makes me very happy. I speak French and English, and am picking up Spanish now that my kids are learning it. I really enjoy traveling and learning about other cultures.

Since I’m following the GAPS diet, I’m fortunate that I enjoy being in the kitchen!

Current Ulcerative Colitis Symptoms:

I’m currently in good shape, relative to where I was when diagnosed – Just not back to myself yet. I’m having 2-3 bm’s per day, but often the last one is very watery. I’m very bloated, feeling lots of nausea especially at the end of the day, constantly starving and very low energy.

I’ve been on the GAPS diet for six months. The diet and medication helped quite a lot for the first few months. However, I’ve had two bacterial infections over six months (both treated successfully with Flagyl) and haven’t felt like myself since taking the last round of antibiotics (eight weeks ago).

Catherine’s Story:

I am looking for anyone who has taken the Mediator Release Test (MTR), ideally while transitioning from the GAPS diet.

I’m seeing a new nutritionist in an effort to help combat my constant fatigue, gnawing hunger and perpetual nausea. Even though I’m following the GAPS diet religiously, I never feel full and am very skinny. And I eat a ton. Multiple friends and family members who haven’t seen me in a while ask me what is wrong, based solely on how I look. So… something has to give.

The nutritionist has suggested that I try the Mediator Release Test (MTR). It sounds fantastic – A test that will tell me what causes my body to produce inflammatory responses, from a panel of 150 whole foods?!? Wow!
Having stuck to GAPS for six months, I haven’t eaten 30 of the foods listed. Here’s the catch – In order for the test to be successful, the foods must have been eaten with some regularity in recent weeks.

This is an expensive blood test, even with insurance. I don’t want to take it in vain.

Ergo, what should I do – Try reintroducing non-GAPS foods, hoping that I don’t have some massive and awful flare up? Take the test and just resign myself to taking it again once I’ve reintroduced the foods very slowly and gradually? Don’t take the test at all?

My nutritionist feels that GAPS isn’t working well for me, and that there is a food which I’m eating (despite it’s being GAPS legal) which is still causing an inflammatory response. Therefore, she wants to come up with a more personalized diet plan in order to keep me sated and still rework my gut bacteria.

I must be honest… the idea of having potatoes, oatmeal, or rice sounds amazing. Like, really and totally amazing. But what will be the impact on my gut? I realize that you other UCers don’t have a crystal ball.

I would love to hear from anyone who has been in a similar situation. GAPS + MTR = Confusion (at least for me)

Medications and Supplements:

Meds:
Lialda 1.2 g x once per day
Synthroid: 75 mcg x once per day

Supplements:
Ultimate Flora — 50 billion CFU x 1 per day
Vitamin D — 4,000 IU x once per day
Betain HCL Pepsin — 3 with each meal

written by Catherine E

submitted in the colitis venting area




Ulcerative Colitis Tips


The FREE iHaveUC eBook "Ulcerative Colitis Tips" is made available to all members of the 15,000 person newsletter group INSTANTLY. It is several pages of tips gathered from other people living with Ulcerative Colitis, and has ideas which can be put into action immediately. You will need to enter your email, and confirm the email address afterwards.

mediator release, MRT

3 Responses to MTR Test? Mediator Release Test – Any Experience?

  1. Adam
    Adam April 13, 2015 at 6:35 am #

    Hi Catherine,

    Do you remember Andrew’s story from March 2014? Well, he is a pretty active guy who also was working(maybe he still is actually) with a naturopath and found some interesting things out with Food allergy testing. Here is the link to this his story, and you might find some interesting points in his story and recovery:
    https://www.ihaveuc.com/food-allergy-testing-and-how-it-got-me-in-remission/

    Here’s another story from February 2013 all about food allergy testing:
    https://www.ihaveuc.com/urging-others-with-uc-to-test-for-food-allergies/

    Best of luck to you Catherine with your testing if you do decide to go that way.

    –Adam

  2. lorri April 13, 2015 at 3:47 pm #

    PLEASE HAVE YOU TRIED THE SCD DIET.
    YOU DONT NEED TO GO THROUGH EXPENSIVE TESTS. I WOULD SAY THE GAPS DIET IS NOT CUTTING IT FOR YOU. PLEASE READ THE SUCCESS OF HUNDREDS OF UC PATIENTS WHO FINALLY GOT THEIR LIFE BACK AND LOOK HEALTHIER THAN EVER. I WAS DX 40 YRS AGO. NOTHING HELPED UNTIL I WAS IN MY SECOND WEEK OF SCD DIET.I GOT MY LIFE BACK AFTER TRYING EVERY MED AND DIET. I ALSO ONLY TAKE ASACOL 2XDAY.HONESTLY I PROBALLY COULD GO OFF OF THAT AS FLARES ARE FAR FEW AND MILD THANKS TO DIET.
    I SUFFERED FROM SEVERE UC DIAREHEA 10XDAY, PREDNISONE CONSTANTLY, BLOOD LOSS, CONSTANTLY HOSPITALIZED. SO YOU MAY FIND THE SCD TO HELP YOU TOO!

  3. Cindy U
    Cindy April 26, 2015 at 8:42 am #

    Catharine, I too began with gaps diet. I gradually transitioned to SCD adding only one food at a time. My GI advised me to drink Lifeway Keifer and it made a tremendous difference. He also advised me to take 600 milligrams of recemic alpha lipoic acid and 1000 mg folate. Like you, I also had difficulty putting on weight. That is no longer a problem-in fact I’m in remission and doing quite well with one movement per day. In my experience the important thing is to add only one food at a time. Once you get to where you can eat scd cheesecake and monster cookies you’ll be able to put weight on. Sometimes it takes a little time to get well but hang In there. I also take LDN. Might be worth checking out
    Best of luck

Leave a Reply