I’ll be 51 in 3 weeks, declared permanently disabled when I was 43 after 20+ years in emergency medicine, grandmother of 5 (2 in heaven 😞) no social life, autoimmune A.N.A. Now A-11. When you no longer “can do” you sometimes get forgotten about.
No symptoms of UC currently, last flare was 10/2015, occasionally my IBS acts up but lots of issues with other health problems currently.
Sheryl’s Story:
I’m currently weaning off 15 years of pantoprazole for erosive esophagus and hoping to wean off Lialda soon. I’m taking Moringa and praying hard. I have prednisone and Ativan on standby. I live on high doses of Tramadol since 2014, Tylenol, daily aspirin (clotting disorder after DVT/PE) Tizanidine, rizatriptan, vir D3, C, probiotics, omega 3 with epa and dha plus 2 other herbs in 1st Phorm Joint Mobility.
My doctor was amazing but he retired and now our Aurora hospital system has NO GI Specialist at all. It’s been crazy difficult to get in to see my GP of 12+ years, feel forgotten. I’ve had 27 colonoscopies so far and 13 EGDs, last colonoscopy and EGD was 2021 and no sign of UC and all looked good.
I’m most definitely trying to get away from ALL RX and replace with nutrition and herbs because I believe modern medicine will be taken away from me soon. I use to be very athletic and active, use to hunt, fish and garden, now I don’t do much of anything, I sometimes like to paint 🎨 but not very good. I enjoy my grandchildren and pets. I also gave up all sugar, gluten and carbs 54 days ago and started collagen peptides and MCT oil. I try to drink a lot of water and I never touch soda. But I love my coffee 😂
Have any of you ever gotten off Lialda successfully?
If so, how did you do it?
Anyone use herbs to achieve remission? If so, what do you use?
I’m seriously open to any help and suggestions. Feel free to reach out to me please. I just can’t believe that to s of RXs for life is the ONLY option, there has to be something safer out there to help us all?
Smoking had been my number 1 help in remission of my UC, if I try to quit I flare within 48 hours.
submitted by Sheryl
submitted in the colitis venting area
I’ve had UC Pancolitis since 2008 and been on meds since, I’m desperate to find natural alternatives and get off of them. If it’s possible??
