I am Laura, from Jacksonville Florida. I am writing in support of my daughter Brenin who is 17 and has been dealing with UC for two years. I am forging the path for her, she can be shy about her condition so we will be doing this together.
I hope to learn from all of you, and look forward to reading/chatting!
Laura’s Story About Her Daughter’s Colitis
We have recently received ultrasound results that show an enlarged spleen. Does anyone else have input, experience with this issue and UC?
She has missed school since the beginning of December 2015, and we have been successful in establishing her 504 requirements so her absences dont hurt her or keep her from graduating.
She seems a lot more desperate with the new year, to feel better. I see her struggle with her cramping and pain and just dont know what to do to make her feel better!
She is currently on Apriso and Mercaptopurine tablets along with a multi-vitamin. She has made a valiant attempt to go dairy free, and is limiting sugar. We are trying to find more information on holistic care and Eastern medicine herbalists and whatever else is out there.
Sh had been in a seven month long remission, but started experiencing flares after Thanksgiving last year. We thought she has contracted the flu, but a doctor gisit said she had a urinary tract infection so she was placed on antibiotics. Five days later she was better, then day seven she suddenly came down with a 103.8 fever, so off to the ER where they hydrated her and gave her another round of antibiotics. Her fever hasn’t come back, but she just cant seem to get back to feeling better and not having abdominal pain.
The most recent evidence found by the Ultrasound is the enlarged spleen. Her Gastro team at Nemours keep telling me that this is not related to her UC and refer me back to her Family Dr. I am just frustrated as a mom. These UC meds arent cheap by amy means, and I wonder if they help at all!
If anyone has any Herbal Teas or Supplements that are helpful please let me know. I am going to start a search for a Holistic care giver in our area, so what should I be looking for in terms of quality?
I don’t want to waste time or money on a quack with an herb garden and mortar and pestal! I have that for cripes sake!
Love and wellness to you all, and thanks for reading
Aka- Mamma Duck