Hey UC’ers & Family,
Today is one of those motivational mornings for me.
Last night was a very special evenings where I had the opportunity to meet live-in-person with a super special person and her partner. Yes, of course, this person also has ulcerative colitis. And even though we had never met each-other in person before, I had a feeling we’d for sure have quite a bit in common. As expected, that was the case.
One of the big takeaways and amazing parts of the evening was me taking the migration back to the days of my first year after diagnosis. This time period is often the hardest for any UC’ers to get past and deal with both physically and emotionally, and in a nutshell it pretty much sucks “XXXX”. Yeah, not much fun.
But, guess what…there is hope. And quite possibly I’m pretty sure that we can collectively as an international group come up with some ways to get past these tuff times. Especially the feelings of being alone in the fight against UC, since that is most definitely not the case. The woman I met with last night had never before met anybody else with UC, and I’m not sure how long that would have continued had we not met. But, I’m happy she now can rest knowing for sure that she is NOT ALONE, and there’s actually quite a large amount of us moving through life with colitis. Life does not stop, even when times are tuff.
Here’s my question for you:
Would you be interested
in meeting up with other UC’ers
who use this website
and the iHaveUC Facebook Page????
I sure hope your answer is a big fat “YES”.
Call me an idiot, but I do believe there is some pretty simple functionality within the facebook program that would allow for me to easily post “Events” to the facebook page (I sure hope you are a part of that page already…since there’s some really cool postings on there daily, some of which does not make it to this website page)
And the idea would be to use that page to facilitate “Local Events/Meetups of UC’ers” (or friends/spouses/etc…). And, with the goal of putting more of you in personal touch with others, I’m pretty darn sure that with some more physical contact with others, the whole “living with UC” thing will become much easier to manage and move past and heck….probably more fun if you can imagine that.
So, without preaching too much here, let me know what you’re thoughts are. Would you actually be interested in meeting with other people who have ulcerative colitis who use this website and specifically the facebook page I’ve created that has nearly 5,000 users (and grows daily)..??
Would you be willing to take a little bit of your precious time now and again to meet with others who might be in the middle of awful symptoms and looking for others to simply chat with????
Heck, would you interested in meeting with other folks with UC to simply talk about whatever the heck you like…Politics, religion, US Russian relations, Professional soccer biters, Rhianna, Michael Jordan…I don’t know….
Let me know, let your comments be known, I think this would be a super huge breakthrough for alot of you.
Let’s get this party started UC’ers,
I added a video a moment ago to the facebook.com/ihaveuc page on this topic, check it out here to: facebook page
PS: And to Sylvie who I met last night, thank you so much for dinner, my wife and I had a great time meeting both of you, and I hope we meet again, maybe with a bigger group:)
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
You cool with that? good!
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