Maybe So, Maybe No

Intro:

I don’t think I have Ulcerative Colitis but I’m not sure. I haven’t been to a doctor but I am in pain with a bloated belly … a LOT. I’ve basically cut out most veggies, all fruit, no lactose or sugar. Just meat and broth and scd yogurt… I’ve also started researching about the low FODMAP diet. There is so much more but I’m too tired to write about it now!

Questions for Everyone with Ulcerative Colitis:

What do you eat?
How do you feel?
Is anyone doing well without medication?
Any success stories?
Any remedy for constipation?

 

Submitted by “Cballer”


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One Response to Maybe So, Maybe No

  1. Tony (UK) May 22, 2011 at 5:02 pm #

    What you have may not necessarily be Ulcerative Colitis or even Crohn’s, it may Irritable Bowel Syndrome (IBS) who knows it could have any number of causes all falling under the one heading Inflammatory Bowel Disorder. It may also be your diet but to answer your questions if you look at the information Adam gives plus his excellent video’s you will get some idea of what many UC suffers eat. For me personally, as we are all unique, nothing seems to work. I can eat something one day and be reasonably well and the next day eat the same and be really rough. Most people who suffer from UC feel really bad when having a flare and not so good the rest of the time, not just from the pain and discomfort but from the mental anguish of frequent trips to the loo, the fear of not getting to one quick enough when away from home and dealing with the majority of people who do not have a clue about the condition you suffer. You also have the worry of holding your job down and knowing either for real or in your imagination that your work colleagues notice you keep leaving your desk to use the toilet, probably have no understanding of what’s wrong with you and the feeling that some may even make a joke in ignorance of your ailment. Most suffers are permanently on medication to reduce the symptoms as I am and try to avert the almost certainty of a recurring flare by taking from an initial high dose of steroids to a regular low maintenance dose. I personally don’t know of any success stories because once you got UC, you’ve got it for life. As far as I know you can only follow diets of the type Adam recommends or agree to have surgery to have part of you colon removed, which in most cases removes the problem. Constipation, I wish. Constipation is not normally associated with UC although many suffers including me had years of severe constipation and a bloated stomach, initially diagnosed as is often the case as IBS, it wasn’t till I started passing blood that I had a Colonoscopy plus an Endoscopy and UC and Crohn’s were diagnosed. If I were you I would see your doctor, the longer you leave it, the more you will worry and the sooner you get it sorted out the better. Best of luck.

    To everyone else, I can only give advice based on my own experience so if you feel anything I said is wrong, please correct, I won’t be offended.

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