Lost!

Hi, I am Pernita from India, I was diagnosed with ulcerative colitis about three years back. I am a mother of two young kids.  I was on wysalone tablets 60 mg for two years , whenever i was told to taper it off my condition became worse. i think my system started depending on it a lot. my doc wanted to put me on azoran but my hemoglobin fell to 4 and had to go for transfusion . It raised to 7 and finally with amway folic subsitutes I tried to raise it to 11 . finaly 5 months back it raised and i was put on azoran. but as told by the doctor that it will react in 3 months approximately… I waited . But nothing happened.  I developed fissures as was taking enemas too. every thing became painful. Was on 25 mg wysalone , 1500 mg rowasa three times a day (4500) , three azaron, codine sulfate three times a day, twice enema and my system gave up.  Had no energy left to face the day. Blood was spurting out on every trip to loo. the pain was unbearable. was even getting cluster head aches ev ery two three days. Then worst came my skin started getting boils. they were full of mucus and left deep holes all over my waist line. As i was trying to treat one the other came up next day. that was where i became totaly fed up. in us hindus we are told . God gives you that much pain which you can bear. i started crying looking at myself in mirror and trying to tell the al mighty above that he made mistake in ng to bear all.judging me. am not that strong enough. Went to my doc and told him that am going off arozan and tapering off most of the drugs as they are nt working. he told me to continue with rowasa . So finally I am off from most of drugs with all the pain and flare up still there and now am lost where to go from here. Can’t give up as my kids are my only hope to hang on to my life.



316 thoughts on “Lost!”

  1. Hi Pernita, I’m so sorry to hear that you are doing so bad. it broke my heart to hear your story. how awful and afraid you must feel. I just wanted to say something to you that could bring some comfort. I can tell you that my 6 year old son has UC, and he is currently on prednisone, imuran, and remicade infusion. we have been doing the Specific Carbohydrate Diet with him for two months now, and he is starting to thrive! I’m sure his medications are helping, but, the plan is to get him off of those dangerous drugs once he shows even more improvement. i would recommend getting the book “Breaking the Viscous Cycle” by Elaine Gottshall as shown on this website. many people on here can give you support and just a release from all your sorrow. i hope you can begin the diet and start getting into remission, or whatever you decide. good luck dear. Linda.

    1. I agree with Linda. The SCD (Specific Carbohydrate Diet) is a wonder cure for a lot of people. And, if it doesn’t cure you, for most people it lessens the symptoms (so far that’s what it’s done for me.) I believe I would be way worse with my symptoms if it weren’t for this diet. I recommend trying it as well. You will get a lot of support on this site, and there is also a yahoo group that you can ask many, many questions and they are very good at answering and helping you with any you might have.

      I am sorry you feel so alone. I have felt that way myself. Take comfort that there are others out there like you, and many like you who are willing to help you with questions, and just reading about their stories too. I find that to read others’ stories, it comforts me in knowing there are others out there like me.

    2. hi,i am sunl jain aged 55 years and i stay in kochi,kerala, india. i have suffered from uc sinc 2008. i took steroids in the begining and for three to four courses. whith starting of high dose i would feel comfortable but as the steroids like wysolone was tapered the symptoms would start again.i was very scared and went to different doctors in many cities.however all the docs had same line of treatment which i was getting from the local kochi doc.i also tried ayurveda treatment from kerala ayurvedic docs. but nothing improved much.

      then i was advised by my friend and my well wisher to go to one unani practioner in jaipur and i took his medicine. i felt very comfortable within the first week and i had a feeling that my stools are becoming solidier. i took both english medicine and unani medicine togather for some time and than slowly tapered english medicine and continued unani medicine for at least one year and i was allright ithought was quite allright and i went off the medicines after that.

      howeve recently in dec 2012 the disease attacked me again and i had to go for the same steroid treatment along with unani treatment. now i am going through the treatment and trying to get out of the problem. i would like to share my some thoughts about this disease.

      1. cause: i assume that a simple case of ulcers which we also get some times in mouth, stomach etc converts to ulcerative colitis because of colonoscopy. in colonoscopy the boom is inserted from the rectum in to the colon and than air is pressurised to take the photographs of colon in different locations.

      the mucous membrane is very delicate and may be it gets damaged as the air is blown and the membrane is expanded to take proper pictures.thus i think an ordinary case of ulcers ( which can be cured by simple food intakes like buttermilk etc) becomes a case of uc which is uncurable by english medicines.

      cure as per my experience: first thing we shoud be not scared and be positive. the most imp thing to aggrevate the situation the tension or stress. one should have minimum stress and more easy life style.

      fooding is very important. pomegranate and its juice has been very good and it keeps hemoglobin levels high and gives us stability. recently i have also taken juice of watermelon and is very soothing to the stomach.properly cooked food and vegetables like pumpkin turai etc should be taken.fibrous foods salads etc shoud be avoided for quite a long time. more liquid foods less of citrous shoud be taken.shrikhand (yoghurt) may also be helpful to keep up energy levels.
      khichadi and daliya (porridge ) is best. can use more of roasted jeera powder in foods( good for binding stool and digestion)

      should go for parallel ayurvedic treatment and also homeopathic treatment as only other treatments may
      improve the system.

      intake of protins is also good as it helps to builds up the damaged tissues of the body.

      the following foods were not to be taken as advised by unani doc. palak (spinach) milk and milk products, papaya, kismis (raisins) almonds.

      finally to conclude i would advise that the improvement will be there slow but diet control is very must. the doctors may advise to take all items other than milk and milk products but one has to experience his own experimenting, after all it is only after we start losing hope of getting well

      this is written according to my experiance and may very from person to person and are only suggestions.

        1. One of my friends is medicine free due to Ayurveda and is now only using Homeopathy — he switched from Ayurveda to Homeopathy. But Ayurveda did not help me at all, rather aggravated my symptoms, for many many months. It caused much more damage and ruined my digestive health. Homeopathy has been helping me and healing me, a lot. I have recovered quite a lot. Now I am taking Mesacol OD, and Mesacol Enema, while also continuing with Homeopathy. The real answer is in finding a good and experienced Homeopath, like I did, after trying quite a few of them. Hope you find positive results with Homeopathy.

        2. Hello everyone.
          I am a UC patient and have been following the symptoms very closely for the past few years.
          Although the medicines are helpful in treatment but i found that one can do away with these medicines totally using following steps.
          V.imp step 1. Use mineral water or boiled water it really helped me.
          Step 2. Go on a dal chawal diet for few weeks until the synptoms totally diminish atleast for a few weeks.You can also eat chicken and eggs but do not use much masala.. Preferably boiled
          Step 3. Increase intake of yoghurt preferably homemade and not packed it helps too!
          Step 4 Start adding each item to your diet and monitor closely
          As per my experience symptoms should reduce in a week or two just be patient and relax.

        1. Sangeeta only protein shake i am able to take is prosure , ensure UC people cant tolerate as it i\has lot of sugar. prosure is good also i would like share that guava fruit is also very help full for UC patients. Shallaki( boswellia serrate available with himalaya herbal is very good as supplement medicine for UC.

      1. Ohhh wow it was really helpful and motivational .. I am 18 diagnosed with UC 6 months ago. I thought that as i don’t like meds so i won’t take them ever.. But this disease made me to literally depend on them.. Having bleeding in my stools from 6 months and haven’t got any improvement yet! This sucks really.. And i also sleep alot.. My hg keeps at normal level. But some kind of crp have increased recently!

      2. my mother is uc patient since 2002 and now she has become steriod depenedent . she is taking ayurvedic medicines too but that is also not helping. doctors are advising to switch to adalimumab injections also called as humira. Can u suggest on same. We live in jaipur. which unanai doctor you showed in jaipur. can u pls share your number or doctors number

        1. Take it patanjali medicine and eat anar very good result I’m suffering 2008 but I’m take patanjali medicine and anar eat I’m feel well

      1. Megna ji I’m forwod doctor name Dr vikarm chouhan mohali punjab ek jrur mile Google par search kar liyejiga number mil jayega mera number 9630296160

    3. U should go for natural tharapy . In natural tharapy u wil get treatment through butter milk . This procidure called takrakalp it will take minimum 45 days . U will be fine for whole life
      Spread this

      1. Hi somesh i m also a sufferer of crohn colitis..how are you these days…i m taking Ayurvedic med from Dr harish verma…initially i got benefited from his meds..rtnw i m without allopathic meds…but from last fifteen days not well i asked to dr harish abut my condition he used to tell me that i will be very fine..very confused don’t knw what to do..if you plz help me on this issue

        1. Prashant Mirchandani

          Takrakalp is a method that must be used by ayurvedic doctor. It starts with only buttermilk diet for 45 days…you will.have to take 5-6 ltr buttermilk on daily basis. I suggest to speak to patanjali yogpeeth for the same

  2. hi Pernita, i am sorry to hear your condition. But dont treat yourself alone. I am one who gone through the nightmares of ulcerative colitis. You might hav eheard about Ruby Hall (Pune). I was been admitted there for few weeks to treat UC. also had undergone clinic trial at ruby hall and several colonoscopies but didnt got results. i had been told by doctors that there is no solution in alepathy for this deieses.
    At the end before @ six months back i started with ayurvedic solutions and started getting results. My bleeding and urgencies stopped totaly. I was on mesacol and predinisolene, i reduced its dose to zero. now i am taking only ayurvedic medicines.
    you can also go for the ayurvedic solution and Panchakarma treatments like Basti along with proper diet. you will definatly get the results. For any assistance you can call me on 9850810046

    1. Hi Netaji,

      I have been suffering from UC from past6-7 months. I have been hospitaized 3 times due to flare ups. I was on predmet, but as soon as it is reduced to zero, I have flare ups. Now I have been put on Azoran, Hoping at least this will help me. I wanted somme tips on controlling UC.
      I have been treated by the best doc in Bangalore.

      Thanks
      Dhanu

      1. Dhanu, how are you doing now? Can you share your contact number. How has your doctor been.. looking for a good GI in bangalore who can help me with my UC – Tired of AIG in Hyderabad and looking for an alternative.

      2. Hi.. Me to suffering frm same frm last 8yrs and i m now jst 23 yrs old, i am a student, pursuing IAS studies. Whn i was in jst class 10th almost every doctor said me to take a easy and tension free study field for life as tensions can aggravate my problem and can put me in huge problem. But i took it as a challenge and made habits likewise to avoid the things which are not good for my health and started to find ultrnatives and adapted to the reality (being different from rest of commons) so that i must nt feel at any point of time in my carrier that i should have taken an easier path for life.. I tried everything from allopathic to homeopathic, met atlest 15 doctors and vedics, everyone was unable to give me respite, but i never give up , i continued to study about this on internet and accordingly tried to change my lifestyle.. Might be u will not believe that i m eating outside food since i stick to this disease as i always study outside my town, still i m much cmfortable with my problem… Nw i have at last halted at ayurveda(indian gem)… There is a doctor of ayurveda in delhi, he gave ayurvedic supliments in the form of capsule… I have been taking it from last 2 years..
        Nw i hv a lot of improvement.. Stool hardly 2-3 times, rarely blood seen (aftr several weeks)… Gained some weight… And much more… Doctor has website named ulcerativecolitiscure.com, u can go there and can consult doctor through emails, no need to meet personaly ( if u reside far away from delhi)…
        Moreovr beal juice is an awesome remedy to control the problem… U must drink it at the time of its fresh availability i.e. in summer season, it is also very cheap solution to the problem. It will definitly give a big big relief esp. In case of unbearable urgencies to bathroom…
        And and and be little conscious about what u are eating, need not be too much worrisome about your intakes once u recovered… Try to find ulternatives to the things u miss being patient of UC. e.g. fond of icecream don’t get embaraced try to have water icecream or yoghurt icecream(by creambell); fond of
        Milk don’t worry u have soya milk that to flavoured eg. By godrej “sofit” , moreovr can have buttermilk with mango flavor, masala chaach made of yoghurt, check on recipie at youtube… And so on.. So inspite of getting depressed and having a feel of being carring a burden of UC be keen to find ulternatives and make it your hobby and try to be enjoy what you do. As depression and tension aggravate the problem… U should be confident and ready to face challenges of life with the courage…
        And one last thing make it clear that ever person has some difference in their metabolism then anyone else so,accordingly they may hv different reactions to different eatables eg. Bhindi dosn’t suit my stomach but it may suit u, likewise i hv no problem with dal(lentils) bt some may have. So one need to observe carefully what one eat and what are the things that case the problem to onself, this step is must to be incorporated in run of life, this is the only tool to fight this disease..

        Best of luck..
        And believe in GOD, if he has given us the problem then he must have the solution, the only thing we need to do is to find the door behind which solution is hidden, inspite of sitting alone and curse ourself of having this burden in life…

        1. Hi Saurabh how are you these days..hope you are doing good.i am also patient of crohns from last two year..from,last eight month i am,taking Dr Harish verma meds with allopathic intially i was good..but from last one month i m not well.same flare up..dont know what to do..does your Ayurvedic. Meds helped you
          plz let me know abot the diet also

        2. Sourabh singhla.. I was diagnosed uc last week and I have lot of query about diet… Can you please share contc no..

      3. Govind Nandakumar

        Dear all.
        Hope your feeling better. Just letting you know that I am an IBD doctor with extensive experience studied and practice in New York. I have moved back to Bangalore with the vision of building an IBd ulcerative colitis and Crohns. Happy to help any of you.

        1. Govind, can you please kindly share your contact details. Really appreciate, I can talk to you in details about my UC issues that I’m going through currently.

        2. Iam suffering from from uc from 2008 onwards and no insurance co. Is giving health policy canyou advise me which co. Gives health policy for me

        3. Hello Dr Govind, I am having medicines for U C with polyps since 2006(Mesacol800&Azoran75) For many years I did not eat hotel food as it used to cause flare up (during which I had to take steroid Gupisone & Mesacol 800 3times)I don’t take milk, raw salad, chicken & leafy veg at all I take a lot of low fat buttermilk & curd & pomegranate juice Now I am fine My question is when can we stop the medicines completely

    2. thanks for shearing information.
      my wife is suffering with UC. we are treatement under aditya birla .
      dr recommand for azoran and infocal tab but due to which she is not comfortable
      as owmiting sensetion is present daily.
      I hv shown at pipri to dr pravin salunke who has recomanded moscus 800mg 3daily tab

      what to do
      pl suggest some best solution

      1. Hi Abhay,

        I am suffering with UC. I would suggest donot go directly to hospitals. Specifically big hospitals like Aditya Birla. I am currently getting treatment from Dr. R V Godbole. There is also Dr. Parimal Lawate. These are best doctors in Pune.

        Regards,
        Sumit

    3. Hi Netaji,
      I came across panchakarma treatment in Ayurveda. The doctor has told me that the live will be back on track after the treatment…I want to know the feedback from you about the Panchakarma treatment ?? Has your symptoms of UC disappeared after the treatment?

  3. It is surprising to see so many people suffering from this condition in India. I too add to the statistics. After many agonising months of suffering, I was diagnosed in April, 2011. Presently I am taking 3 tabs. of Mesacol of 1.2 g each per day. Tried to see if I am fine by not taking the medicines for 2 whole days and the bleeding returned. The medication gives me mouth ulcers. But I am happy to be responding to the medicine for now and am recovering from a dismal blood count. Wonder what is in store in the future.

  4. My daughter is 7 years old and has UC. We are relocating back to India from US. I am really worried about the medical care she can get in Bangalore. How good or bad is it?

  5. I am also suffering frm UC………it has been 6 long years……iws 13 whn is was first diagnosed with uc left sided……no help from the school……i even gave my board exams with 20 stools/day 3gm hb n 102 degree fever left leg thrombosis…n had to go fr immediate treatment between the exam days…doctors said i wud have died if i had come a day later…..medication…..name it i have taken it….with little or no results…….then with gods grace i met with a Gardner…..yes a gardner who gave me natural herbs……plants……n guess what no blood no mucus nothing…..all the side effects toxins where removed with his natural treatment……for those of us in india i strongly suggest ask gardners…..the old ones…they know everything

    1. Hi Akash
      My daughter has suffered immensely this since dec 2010… she has had severe flare up and been through the worse… is it possible for you to check with your gardener the exact herbs you took… im always interested in natural cures…

      the one thing that has recently helped my daughter (she is 25 ) is strong Haldi drinks… she takes it thrice a day before her meals… and it has done her wonders…her cramps, bleeding and her stool formation and frequency and diarrhea is 90% improved… i would advice all those UC patients to try this harmless cure along with what ever else you are taking…she is still tapering off her steroids and is on her last 5 mg a day… and the quick tapering off was only possible due to this miracle drink. In Bangkok we get very good fresh roots in the market… we take a good amount and cut and pound and throw it in a pot of water… slow cooking over 45 min…. make a strong broth… reduce and make about 3 to 4 cups… refrigerate and finish by end of day.

      1. hi kiran
        u are very right… i am also using haldi powder everyday with curd almost 1/4th of a spoon. this was told to me by my ge physician…. i am telling u since the time i have started this i have never had a relapse. yes minor incidents of slight blood in stool once in five six months do occur … but mostly i am comfortable .. but i am taking my complete medicine regularly…. i hope she also takes this and feels better… good luck to ur daughter and the lady who says she has lost… may god give her the strength to fight with this and she comes out of this disease soon…… harsh

      2. kindly send recipee of Haldi drink which your daughter took.
        I am 71 years old and am suffering with UC for the last 3 months and on medication.
        Kindly help and obliged.

        1. Desi cow milk 3/4 glass mixed with 1/4 tea spoon or less haldi powder or 1/2 tea spoon black seed oil taken twice daily is helping me for last 1 month , please all try this, I am a severe Pancolitis patient for last 7 yrs and no meds helped me till date , this drink is promising.

    2. Dear Akash,

      Nice to hear that your all symptoms vanishes like anything. Yes I believe, for this diseases, only natural medication works fairly. You are lucky that you got Gardener who given you medication. but every sufferer like us are not enough lucky to get the gardener like yours. Can you disclose which medication you got from gardener. or else you can give your or gardener’s contact no. so that we will also get the benefit from ancient medication. You stood sufferer from UC hence you know the hell of pains in this diseases.
      god bless you.

      1. Hi netaji,
        Its nice that your symptoms have vanished. Could you please give me exact details of the medication that you have been using. My mother is also suffering from UC since 4 years now. She has been taking allopathic medication.. which involved mesacol, but the results were not satisfactory, now we are planning to give her homeopathy treatment, but we know nothing about it. It would be grateful, if you Could you please help me with some suggestions

        1. Hi everyone.

          Iam archana, even iam also facibg this ibd and ulcer colitis problem past froma month.. But doctor still not cleared with the report wheather it is chrons or ibd or infaction.. Currently iam taking treatment in fortis and he is the best i guess.. He put me on striod with sazaa 1grm everyday.. Before colonoscopy my bleeding was stoped with some antibiotics treatment.. But sti i don’t want to take risk iam following what my doctor says.. Please pray for me my final colonoscopy will tell me wheather it is for crohns or ibd or some infaction of ulcer..
          God is always watching us.. He is the best doctor in the universe belive in him and start living with what we have and belive me one day medical science will find a permanent solutions for this kind of issues.

    3. hi akash, can you tell us the name of the herb or can u give us the phone no of that garnder.. or can you look for that gardener for us. my phone no is 07597189819 … i shall be grateful … thanks
      harsh

    4. Hi akashji,
      I am uc sufferer n wanted to ask u of the herbal remedy which u took by the gardener who gave you. As it would help me n many other sufferers who have this horrible condition. Can u pls mail me if u can as I am living in uk England. Once I hear from u I can even ring u bhai. And we can talk n U can give me herbal names u took.
      I look forward in hearing from u bhai.
      Regards.
      Hitesh.
      P.s my email add is. hits.j@hotmail.co.uk

    5. Hi, Akash nice to here you are out of symptoms. Recently I was diagnosed with Ulcerative colitis 1 month back & Doctor recommended Asacol & mesacol tablets, but thr was no result.

      Could you help me in solving this problem, since 1 month I was suffering very terrible.
      You stay in which place & what was the plant(nature remedy) that was used by you.

      B’caz I don’t know any gardener & no one else.

      By reading your’s comment I got some hope, that you could help me.
      wating for ur response.

    6. Akash
      can you please tell which herbs you took. i ahve been suffering from UC since 1 1/2 year currently under medicatation. even under meidcation, it ain`t any better.

      can you please tell me which herbs u took

      thanks in advance
      sunny

    7. HI Akash ..i m also a pateint of ulcerative colitis for one year..
      i m only 23 yrs old.. its a very hard to have this disease..
      can u tell me details of herbal treament which u received from your gardner. i shall be thankful for this kindness..

      9560481865

    8. I HAVE ULCERATIVE COLITIS SINCE 2001 AND 2009 I TOO GOT DVT … DEEP VEIN THROMBOSIS . I TOO WAS LUCKY AS CLOTSS DIDNT TRAVEL TO HEART DUE TO FULL BLOCK OF IVC.

      I STILL HAVE UC AND DVT . I AM HAVING WYSOLONE 20, PENTASA 500 X 3 FOR UC AND ACITROM 4 MG FOR DVT . CAN YOU HELP PLEASE AKASH
      KETAN 08484812345

    9. Hi akash
      Please send me the name of the plant. I am also suffering from ulcer and bloody stool. Please send me the info at the above email.

    10. I don’t like people like Akash, who just say there’s gardener medicine, but don’t tell anyone what it is. PLEASE HELP EVERYONE AKASH!!

  6. I too am an Indian suffering from UC for 7 years now. One year ago, I started a gluten free diet and my symptoms went away within 3 days. As a vegetarian Indian, it is very difficult as our diet is heavy in roti, parantha, puri, etc. Gluten is found in wheat, rye and barley so you have to avoid these. I find rice, dosa, chilla (a besan crepe) are all agreeable to my system. You can also make roti from other flours. I, like some of you, found that as soon as I came off the steroids, my symptoms would worsen. I don’t know about the Specific Carb diet, but I can tell you that gluten free makes a HUGE difference. I had come off of all my medications (Lialda and Entocort) but started back in 3 months. I think my allergy to SOY contributed as I started drinking soy milk for the protein. Once I fully recover, I plan to try gluten free/soy free diet.

    Please let me know if this helps you. I would appreciate it. Thank you.

    1. Hi Rashmi,

      I found your mentioning of besan stuff like chila of interest. I am currently under uc flare up. Meant to ask your advice on whether Dhokla would be fine. My sense is that is made of besan, and should have healthy bacteria for colon

      Would be grateful for your revert.

      Regards.
      ajit

  7. I am suffering from ulcerative colitis since 2006,previously wrongly diagnosed fisher,after colonoscopy ,i started mesacol 400mg three tab. twice daly.also I have taken KUTAJAVLEH/KUTAJ GHAN VATI an ayurvedic medicine with this.that almost control my colitis.Also reduced spicy foods and started PRANAYAM /YOGASANAS as per Swamy Ramdev Baba CD. It is realy benifitial.please try ….

  8. Hello,

    I have Ulcerative colitis from June,2001.I had numerous flareups and hospitalisations due to infections and flare ups.I am from Nepal.
    I am currently on 6 tabs Asacol,Imuran(Azathioprine)-150mg per day and was previously on Prednisolone(taper from 40mg to 2.5mg on a weekly basis).I am also using Hydrocortisone enema on a daily basis.I am currently having a flare for about 4 months and it just dosen’t seem to come under control.I am depressed and have suicidal thoughts these days.I have a small baby and nothing seems to work for me.I am having bland and restricted diet with almost zero fibre but nothing seems to help.I have zero energy and my marriage is falling apart because of my illness as i cannot do anything for my family and being sick for soooooooo long.I wish no one on this planet has this disease.It is no less than a curse.

    I tried Gluten free diet last year for 4 months but it did not help!!

    1. My wife is suffering with ulcerative colitis for last 30 yrs.Initially it was bloody stool and motion was 6/7 times a day. Night fever and sneezing was there. After 6 /7 yrs Mucus started coming. Tried Homeopathic ,Ayurvedic and Allopathic treatment. Doctors treated her for malaria,TB,etc. In 1984 she
      was treated as UC and doctor gave Salazopyrine . After that she started regularly Asacol, Pentasa and now Mesacol 1.2g. In between she has taken steroid,Enema. But this disease is unpredictable. At last
      (1999)we consulted Kerala Ayurvedic in Coimbatore ,India. They suggested different types of medicine and continuing for last 12 years. It has a cycle after 7 months what we faced recurrence is there .Now we are facing every 3 months. If the motion increases then she takes Antibiotic and increases Pentasa. Now she is taking Mesacol1.2g but not comfortable.No blood now only Mucus 1 or 2 times a day. Motion 3/4 times a day.She on Allopath and Ayurvedic treatment.God should not give this disease even to enemy
      Steroid once in two years. Weight loss is there.You can call 919874194155 for any suggestion.She is 60yrs old.No permanent cure I see in near future. Thanks Haren Kundu

      1. try (Stomach D) from satveda.com multiple ingredients for treatment of stomach and digestion, I’m trying this now and hope it works.

    2. hi shygirl
      i am also a patient of uclerative colitis for last 8 years. numerous flare ups in first four years. but since last four years i am quite comfortable. i am taking my medicine proper. then i am taking fishoil capsules seven seas. then i am taking curd twice daily with turmeric haldi powder 1/4 spoon everyday. basically i mix curd and turmeric and have it before meals. then i dont take much of citrus fruits like sweet lime. i mean even if u have sweet lime, not more than half to one medium size piece. rest of the things which u are doing u must continue. i when started with turmeric i had three four motions extra with yellow colour water etc. may be it was cleaning my colon. bus since then i have been almost comfortable. i hope the best for you. may god bless you and give u the strength to fight with this problem.

    3. hey i can understand ur condition as m too suffering frm uc,i wud like to suggest u to plz take ayurvedic medicine ..go to a nearby ramdev patanjali clinic the medicines they give with yoga helps a lot .i wont say that it cures u completely but ya the no. of relapses do grt decreased nd severity gets reduced toooo….

    4. keep taking all medicines as prescribed by docs…………..but i have been taking curd with a 1/4 tea spoon of turmeric as told by my ge physician… and for last four i am almost comfortable
      i wish u the best ………hope u recover and be comfortale soon…..just dont loose hope………this illness disturbs initially for about 2 to 3 years and then ……….one is generally comfortable..i mean u come to know how to lve with it……but i am sure u will get better

    5. i am much cmftble ………..i am taking just pentasa 2 tabs thrice daily and curd and turmeric and just avoiding chillies ……..that is all……………u all can contact me on my email…….harshrajrif@yahoo.com ………….i feel good when i am in contact with ppl like me having same problem………and i ll be honoured if i can be of any help…….harsh

    6. Hi shy girl , I am a mother of daughter who has uc. I am in the USA. Asacol can give your severe diarrhea , this was the case with my daughter try another 5sa. Also pentasa is new and seems to help more then asacol. For all other readers who may have gas the indian squash dhoodi with mint in juice form helps a lot. I wish you all best of luck as it is a very stressful disease for those in school and at work

  9. I wrote in June 2011, when I had been diagnosed with this disease. During this 1 year, I experimented a lot. Now,one year later, I have reduced my intake of mesacol to 2 tabs per day. AT times, I do not take it for a good few days. BUT, I have reduced my intake of meat based diet, taken away carbonated drinks and reduced wheat based diet. Whenever I eat any of the above, I get ill.

    My research led me to use of a fruit called Bael. Bael (woodapple)has helped me immensely. So does Aloe Vera. When I get a burning sensation in my stomach, due to acidity, I take a teaspoonful of Eno in a glassful of water.

    Mesacol resulted in weak eye sight, hairfall, memory loss in my case. When I reduce my intake of Mesacol, these conditions show a marked improvement.

    On a more personal front, I have stopped being a perfectionist. I am more relaxed and have sidelined toxic people from my life. Professionally, I have slowed down from the rat race. I take each day as it comes. I had a habit of being worried chronically – I should be in a position to do everything possible in office, at work so that no one gets burdened on account of me. Believe me, it does not help. No one praises you for those extra efforts. You only end op getting Ulcerative Colitis.

    Support groups on facebook are a big help.

    1. you are absolutoly right, no one praises you so i stopped working almost just come to office relax do routine work as it comes..not running behind boss for new projects…he he.. and managing my UC…..yoga pranayam helps a lot….also diet is really a major factor atleast for me i have seriously noticed this….for me very simple i just remember what to eat and out of that least if try to eat anything i keep my finger crossed for next 2 or 3 BM. oooops need to mention my list of food if some one is interested… simply i divide in three food (logic of eating small food every two hours did not suited me and my conclusion is you are keeping busy your gut every time so better 3 meals a day not too big (over eating no).
      breakfast:—- green tea, two piece of brown bread or better french bagguet with honey and potato or paneer (no cheeze stricktly), one banana.
      and then i take green tea between breakfast and lunch (remember no cookies nothing just blank green tea)

      lunch:- two or three very thin (like papad) chapati , any gourd family (tori, lauki, tindo, chappan kadoo, simple yellow kaddoo permal, zacucchi, ) vegitable or potato curry, green beans, carrot, cauliflower ok for me, brinjal also some time , (remember no tomato, no onion , no garlic even for tadka or chhonk whatever you call it)

      again green tea or any other fusion (not perfumed) any herbal tea is ok , i found one very good from South America called Yerba Mate helpful in healing , forget the benefit atleast no side effect. or better a soup i take casava or tapicoa soup …

      Dinner:- two or three chapati thin again ::::::: with any of above mentioned veg or for change you can make a recipe we call it in Rajasthan Curri or kadi with Bajra (millet) flower , remember DO NOT make it with BESAN(black channa atta)………………………………..

      well thats all nothing else ohhhhhhhhh you might be interested to know my case
      first diagnosed in Jan 2013 severe started with mesalamine 6 (800mg at a time) per day and entofoam trhough rectum good for intial three months but slowly came back again worse this year january, was on steroid for a month. then in March 2014 started above program and got relief….. but still on mesalamine 1 (400 mg) after every meal and one mesalamine suppository of 500 mg every morning or alternate day as i have ulcerative procritis so my blooding start from rectum and goes above slowly. …………………………………………………………………now no blood once in a 15 days or so i still see some blood but honestly everytime when i try to eat out of above list cost me heavily…

      you can mail be openly vinodvishnoi@gmail.com share your expereince may be we together come out of this horrible phase …..with god’s grace

      thanks
      vinod

  10. Hi Everyone,
    This is a story of my sister (Nafisa Naviwala) who had Ulcerative Colitis few years before-
    6 years ago at the age of 21, my sister gave birth to a child… On that day she passed the stool which was very liquid… From that day the actual problem started but couldn’t realize… Every night she use to go for toilet once, but the frequency increased day by day… After some days the stool also contained drops of blood… We went to several doctors to diagnose but none of the doctors could imagine what the actual problem was. They thought it was piles. After several doctors, one of the doctors examined and asked to go through an endoscopy. We went to Rajkot (City).
    We did the endoscopy but due to careless behaviour only half of the Endoscopy was done. Medicines were prescribed by the Doctor which was mainly Mesacol and others. The problem was contained for several days but then it came to that point again. Doctor was contacted and asked to increase the dose to double. But problems continued.
    We didn’t trust the doctor anymore, so we shifted to one of the famous hospitals of Mumbai. Once again the overall process started but problems continued. The daily charges and medical charges were too expensive. After 8-10 days treatment under Doctor’s supervision, we decided to come back and continue from our hometown. After some days, we came back to the original medical clinic. Contacted the doctor but he asked to get admitted and to be in his supervision. This was not which could be afforded.
    Doses were increased but there weren’t any solutions… People gave us all sorts of advice- knocked the doors of homeopathic, Ayurvedic and several others… This continued for a year. But the problem still prevailed. Doctors use to show faith and trust on their medicines but there weren’t any results.
    Weight was reduced to 27kgs from 42kgs. Frequencies of motions were increased to 12-15 times in a day. Other severe problems started: black outs, memory loss, weight loss, body pain etc due to heavy doses of steroids and other medicines.
    Family Surgeon recommended a Gastro-Enterologist doctor in Rajkot. One more knock on the door. This time it was Wockhardt hospital. Overall process was again started. Endoscopy, Biopsy and other major blood reports were done. After examining the reports, on consultation doctor advised, the problem has been from a long run and colitis spread in the major parts of large intestine and it could also spread to small intestine which could further lead to Cancer.. He advised, we would take a chance with medicines for maximum of 3 months, if still prevailed would recommend surgery (removal of large intestine).
    Medications were started; suppository, azoran, mesacol, Entofoam and others were advised. But no recovery in the given deadline. Same problems existed. Doctor asked to opt for surgery and recommended one of the best doctors of Gujarat.
    Moved on to Ahmadabad this time, Hari-Bhakti Surgical Hospital now as Kaizen Hospital. Under the guidance of Dr. Hari Bhakti and Harshad Soni two well known masters of this field. Surgery was done in two stages and Large intestine was taken off. At first some minor problems prevailed after surgery, but then everything was taken care by these doctors.
    Ulcerative colitis had ruined her entire life. Marriage life ended in a divorce as soon as Ulcer was diagnosed. Now she lives a normal life with her 2 children. My advice is not to take Ulcer symptoms lightly, as it can damage your whole life. Homeopathic & Ayurvedic is hard to believe in these cases. People simply waste months and years in these treatments. If 6 years before we would have consulted a specialist or a good doctor we wouldn’t had to come so far. It could have easily been treated with medications.
    Please do consult in case you need any further advice on my email- nadeemnaviwala@yahoo.com

    1. Hi Nadim,

      My story is very familiar to your sister’s ordeal. I was diagnosed with UC 3 months after a forced arranged marriage. I’m sure I wasn’t aware of UC before that because stress exacerbated the UC & I started suffering its symptoms after marriage. I suffered from bleeding & weight loss. I was afraid of eating & went on a liquid diet for a year before the 1st major flare-up that caused 4 hospitalizations in 4 months. My so-called husband started making fun of condition & that made me feel even worse both emotionally & physically. He was in India awaiting his US visa since I’m in America. I ended the so-called fake marriage & felt 50% improvement in my condition. I had to get the same surgery as your sister & now I’m struggling to gain weight!!

      1. hi dimplezz
        u wrote that u underwent surgery………….can u pl update us about how u doing after surgery…….so that we can benefit from ur experience of surgery
        thanx
        harsh

        1. Hi Harsh,

          I had J-pouch surgery in 2011 & my diet has been restricted to soft foods like potatoes, mung dal & other easy to digest foods. I avoid fried food & don’t eat out.
          The doctors say that I’m cured & that I can eat all types of food but that’s not true. When I followed their advice I felt sick. I wasn’t planning on getting surgery but my colon got perforated during colonoscopy :( so had to get life-saving emergency surgery. If your
          UC is manageable with a specific diet like SCD then I would recommend the diet.

      2. thanx dimplezz. for the reply and information u shared with me
        i am sure god will be kind and u will be better……..dont give up…………dabbi ja (it is in punjabi)……..that means u must continue ur efforts (keep ur foot on accelerator and just keep pushing on)…all the best

      3. hi,
        i am suffering from UC since 3 years now, this ruined my best paid job in Singapore,
        i took up easy and day time job, people with UC should never work in night shifts. i am managing with Masacol .My night shift job gave me this after 13 years of work life, i am shattered and my career screwed up.guys the life goes on, ok now, but scared.

    2. My name is swadesh bhatt n i m from dehradun,uttrarakhand.i got ur mail id from a web page called ‘ihaveUC’.i have a sister which is suffering from ulcerative colitis for last 7 years.she is maried and has two kids.as ur sister had the same disease and u told dat ur sister went thorouh surgery. after surgery how is she now..is she perfecly alright?? is dere any consequences of surgery?we are also thinking to go for surgery from d same doctor which u mentioned in dat page.kindly guide me for same as we are now tottaly blank..we have gone to so many doctor ,did some ayurveda treatment and homeopathy as well..but all is gone in vein..
      it would be very appreicable if u can provide ur contact no. so that we can talk in detail about it .
      i wrote a mail to u but i guess ur mail id is nt working.so d mail is deliery got failed.if u read the page kindly rly on this as soon as possible or share ur new emaild..

    1. Hi i am pradhumn I was diagnosed wid ibs in June 2018 I take allopathic medicine for 4 month but nothing was working than I also lot 10 kg weight I told this to my doctor than he suggest me for colonoscopy and told me that I have colitis after that one month of allopathic medicine probiotic antibiotics and steroid but symptom are as it is than one of my friend suggest me for ayurved treat met that was amazing now I have no symptoms I gaming 4 kg more weight I can help you with a few tips which is really works my no is 9897112676

  11. hi nadim naviwala,m also UC patient living in mumbai,m fr manipur but as thrz no gud treatment thr m family askme to stay here i hv it since i was sixteen then d flareup was mild but since m also a part of mumbai fast life n hardworking person. i went to cruise without m mum consent n gt a real bad flareup 2006 vry serious iwas in icu.iwas given remicad n another flareup in 2009,cant evn raise m head but remicad work again but now 2012 it doesnot but God miracle plan happen within two days after a real depression m motion bcum solid wt three movement n iwas given 350 ml blood, albumin now i jus cm out of d hospital, due to blood lost n low albumin less nutrition absorbtion i hv to tk supplement so many other foods like curd,pomogranate juice rice, quinoa,suji,chicken.well iwas about to go for surgery but as God gave me another chance i think d best is to mk drastic lifestyle changes, eat healthier n i started yoga instructor course,m family dosnot want me to work but i cannot live wtout working esp. in a place like mumbai,n i plan to love myself more n hv a positive n wanto kp in toch wt pple fr mumbai n around who suffer like me coz ds flareup realy mkme low n emotionaly drained me. if possible u may contact me 9892053860.i can understand urconcern m sister bn always wt me as m mum was also a kidney transplant patient 2002 n passed away i 2010.n m dad support me financialy except for m first big attack iwas in US so d cruise company paid i also lost confidence in man,i hv a guy who assured me dat he vl tkcr of me but smtm i feel he jus sayn to mk me feel better. well i understand what ur sister must hv gone through but she isnot alone n we cn still eat healthy n live happily

    1. Hi, This is Ashish, 26 years old. I have UC since 2007, had a major flare up in sep-oct 2011, had terrible bleeding and pain, was 37 kgs, but treated well at Asian Institute of Gastroenterology, Hyderabad. I am really grateful for all the support I got. Especially my family, friends, and doctors.

      I had to discontinue studies. Anyways, that is fine, since health is more important. As of now, I am fine although on Steroids. Again, its okay :). I am grateful that I am able to work.

      One thing which concerns me is marriage. Any inputs and insights! For me, it’s okay to be single :). Still…

      1. Hey Ashish,
        I also have UC & was diagnosed at age 27. It’s not easy to find somebody who understands the otion & physical pain this disease causes so I have been divorced ever since I got sick. So, try to find a understanding life partner who will not judge you because of UC.

        Take care :)

        1. we r all on the same boat. we can treat each other like friends and share our problem on this site….. dont trust ppl unnecessarily……..and dont expect much…………..it is difficult and can cause further damage to our health…….
          harsh

        2. you are right, i am diagnosed at the age of 32, by this time i was 7 yrs into marriage and my wife is so good and understanding, helps me in all ways.otherwise it is not easy.

      2. hi
        ashish even i am have uc from last 5 yrs can u please let me know which druges u r taking ryt now is it mesacoal, wysolone. omnacortril or ezoran ? and also let me know that taking drugs like wysolone or omnacortril for long time is good for body or it will harm after some time

  12. hi people,
    Though i dont suffer from U.C but more or less have been suffering from the same ordeal. I am 27 and i stay in mumbai. I have had 4 colonoscopies with no proper results, hence no matter who i consulted the final answer was IBS. I lost 50 kgs of my weight in one year alone i was afraid to eat just like dimplezz.
    Started SCD in Oct 2011, after almost a year and an half i am med free. I follow the diet religiously. My BM is regular which is 1 daily, it used to be 8+ sometimes before the diet with lots of blood. This diet changed my misserable life back to more or less normal.
    I was literally in home for almost 4 years with nobody to talk to about this stuff bcoz they dont understand and make fun of you. Anybody in mumbai who needs to talk to someone about the diet can contact me.

    Take care,
    Rahul

    1. Hi Rahul,
      I am in Mumbai, Can u plz give me ur contact no or email id. I have been suffering from UC since a year and wanted some help frm u.

      plzzzzzzzzzzzzzzz

    2. Hey Rahul, I am Rujuta, living in Mumbai. I am going to start with SCD next week.
      Can I get in touch with you if possible?
      If its ok can you give me your email address.

      Thanks.

  13. hi rahul
    i m genrly cmfrtble
    but of n on lil probs r part n parcl of this
    m happy that m back twds normalcy
    i dont take any specific diet
    i tke everything incl nonveg,,,just avoid red meat and mutton
    avoid stress and getting angry and emotoinal abt things
    i do take curd with 1/4th tea spoon of turmeric dalily
    this ws adviced to me by my ge physician
    u may also try…….it wont disturb much
    but for one odd day it may
    wish u and all ppl suffering with this prob a healthy and comfortable life
    dont loose hope
    there r so many of us on same boat
    take it that u will get better soon
    last bt not the least
    keep takin the medicines as advised by the ge physician
    regards
    harsh

  14. @ Dimple, Thanks for the inputs :)

    @ Bhavi, I am in remission, I am using Mesacol, Prednisone ( 12.5 mg, 8 days to go), and occasionally I try VSL#3 (Probiotic, this is good.)

    Also I am using ayurvedic medicine, which has been effective.

    *1 tsp of Bael Fruit Powder (dry) + 1 tsp of Mulethi Powder + 1 glass of Water. You can check this on youtube (Ayurvedic Medicine for Ulcerative Colitis).

    I hope you are doing well. I wish all of you a very good health. Thank you.

  15. hi all,

    same story ..i take mesacol 12.mg thrice a day .and mesacol enema .bt its of no use for me till now.
    with steriods i am okay but as it reduces .it repeats .In my case its 3 mnths.

    Many thing i hv tried .

    After reading the complete blog .One thing is sure it can only be controlled .As its auto immune disease and different ppl have different immune system .some remedies work for once but it may not work for other.

    Alopathy and homeopathy has not given me any solution .

    If any one knows anything in Ayurvedas so kindly share .
    Any doctor or remedy

    Curd with turmeric i have not tried .Now i”l try that too.

    I m from delhi .
    mob.9988134089

  16. hi all
    As i have already told you guys that i am taking all medicines as prescribed by the GE physician and alongwith it i have been taking curd and turmeric…. i just wanted to update u guys that i have started having bael juice which is genrly available anywhere in india in summer season. since the day i have been having this bael juice i am feeling much better…the stool is more formed and frequency has further reduced.
    this has no side effects as per me
    i would recommend this also
    just try it for a month and i am hopeful that all of you will get some relief from this.
    all the best
    looking forward to your comments after around 1 to 2 months
    pl do tell me if u get sm benefit from bael juice
    harsh

  17. Hi All,

    With a God Grace things for me has changed drastically although I still do some stupidity .

    Just few days month back I started taking Ayurvedic medicine .It Cost RS 2000 for a month .I am taking it mesacol and Azoran .

    But slowly I am reducing it and flare up are not repeating .Now I am a normal human being doing and living life happily .

    All those who are fed up Allopathic kindly switch to ayurvedic .Consult a good doctor .Although Ayurveda has got solution and its very specific so every doctor gonna suggest the same .

    For any query just ley me know .mob.09988134089.

    And above all the best cntrl is Eat monitored food means you have to mind what you are eating .

    Naa jyaada naa kum only optium.

    Bael Juice is wonder thing for this disease .It does miracle that you cannot believe .So whatever harsh is suugessting is ryt .Bhagwan bhole Shankar ka Prasad samjhkar mast khaye .

    aur ek baat .Accept that you have this problem .And you can every battle with this problem .Just you got to monitor youself and go to Ayurveda .

  18. i am new to this disease.
    Started last month.
    2 weeks rest with med – probiotic, sustained release, nd daflon in 2nd week,
    blood was in traces
    whenever i had digene, my stool were perfect

    went to office nd had to return- my son was born

    ate a chilly dish nd then next day had moderate blood

    finally after a week , had sigmoidscopy revealing ulcers
    biopsy awaited in 5 days

    i dont kno which colitis wil i have?

    Yes, diet moderation affects it

    i m havin 4-6 stools a day
    with blood variations being -nil,traces,mucous with pus
    smtimes even hard stools

    a period of high stress triggred me into this hell

    i already have an uncurable scalp disease

    i dont want to have UC

  19. im a 49yr old woman…suffering from colitis .doctors couldn’t find what type of colitis I have even though had to do 3 colonoscopies with in one year….im living alone because im a separated woman ….im from Hyderabad and getting treatment from famous Yashoda Hospital..been hospitalized.last year I was on pednisone for a week but stopped it due to 3 episodes of nasal bleeding to increased blood pressure .steroid was the culprit. now Budez cr and pentasa granules since 4months…no blood …but loose motions at least once in a week….my main problem is I feel like I dnt have any life any more and im scared to death…..still couldn’t forget the pain and bloody stools I had for last one year…..I feel like any tim e same things can happen again and I dnt have the strength to face that …I have high bp and I need to monitor my BP..most of the days as long as I take steroids.im depressed…

    1. @Anu
      Just feel the grip. The disease is here to stay.
      I have been 5 months into this beast. Thankfully to God, I have managed to reduce my symptoms and fight with it. I had lost hope initially, but my family gave me my strength back and I am working with almost the same zeal as before. Sometimes I do get the cramps, traces of blood but overall its manageable. Above I have started to eat all the stuff I had stopped – Paranthas, tomatoes, Maggie, tea, sweets, etc all in limited amounts
      i have reduced my medications as well. I know this disease does not heal. you gotta have inner strength to fight with it. May god be with you..

  20. hospitalized few days back,it was a nightmare,terrible injections,tear is always in my eyes,afraid of taking any food worried abt my future…my family my job…lost my confidence totally…..only hope is my almighty….i.m from bangladesh…

  21. i was a lovely fair lady….huh….fullof energy… jeal ..used to manage home n office with ultimate perfection..but my life is literally stopped in 34..what an irony..uc has shattered my life ..now im a bundle of some bones…weak,tired…cannot walk properly….my husband almost mad,my cuty kid frustrated and my parents what shoul d i say…abt them…every moment they r supporting me …but i know how mch tear they shedding on the sly ….i’m planning to go to india for better treatment ….if any of my friends help me with any info .i will be grateful….coz i don,t abt indian hospitals …..everyone in bangldesh says that i need to go to india.

    1. Hi Zinnat,
      I would advice you to take 1/2 spoon of turmeric 3 times/day mixed in yogurt or water. *1 tsp of Bael Fruit Powder (dry) + 1 tsp of Mulethi Powder + 1 glass of Water. You can check this on youtube (Ayurvedic Medicine for Ulcerative Colitis).
      Also try probiotics like VSL#3. Stop eating wheat & anything with gluten.

      I’m sure you have Ayurvedic doctors in your country. Try them first b4 going to India.
      Hope you feel better soon!

      1. hi dimplezz,
        u r as sweet as ur name…n so kind to answer me.i will try the aurvedic n probiotic…i need to search in my country.i take barley and suji r the good ?i’m very confused abt food all day long i search in websites at times they contradictory.i take 9 mesacol+2 cortan+calcium,folison,iron….my pressure is low….70-90….weak..but after all this treatment when i see blood stained stool i get crazy…will it continue for ages dimple?or does it happen to all?

        1. Dimplezz ,
          dear friend i had swelling 4 days back also due medicine cortan side effect…now i dont have bloody loose motion. 4 -5 times now….stool normal but at times blood stained.i’m still under doc’s bed rest .he is saying i’m doing good is it true ?i rely on almighty then the uc sufferers then on doc’s.they r so mysterious !!!

          1. Hi Zennat, seems like my last reply to you was cut off.
            Anyway, do follow your’s advice but also keep trying the supplements like turmeric & probiotics. I would also suggest you start juicing
            veggies & fruits like green squash, ginger, apples. They will give good amounts of iron. The blood in stools will come on & off because of inflammation so be on a soft food diet like light soups, rice & fresh filtered juice.
            Take care & let me know if this helps!

          2. Hi Zennat, seems like my last reply to you was cut off.
            Anyway, do follow your’s advice but also keep trying the supplements like turmeric & probiotics. The blood in stools will come on & off because of inflammation so be on a soft food diet like light soups, rice & fresh filtered juice.
            Take care & let me know if this helps!

  22. I found a treatment plan documented on the nih (National Institute of Health) website based on a scientific study of 43 UC patients. The data is good but where can I purchase these items in the U.S.? Has anyone had success with this combination of ayurvedic medicines or opinions on on this recommendation?

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3202252/

    After confirming the diagnosis 43 patients were given the following treatment –
    Udumbara kvatha (ingredient is Udumbar tvak-Ficus glomerata) – 40 ml/two times a day
    Lodhra tvak churna (Symplocos racemosa) – 1 g + Musta moola churna (cyperus rotundus) – 1 g + Nagakesara (Mesua ferrea) churna – 1 g + Mukta panchamrut rasa-125 mg / three times in a day with water (the ingredients of Mukta panchamrut rasa are Mukta bhasma – 8 parts + Praval bhasma – 4 parts + Banga bhasma – 2 parts + Shankha bhasma – 1 part + Shukti bhasma – 1 part, processed in Ikshurasa, Godugdha, Vidai svarasa, Kumari svarasa, Shatavari Svarasa, Tulasi svarasa and Hansapadi svarasa).
    Kutaja Ghana vati (ingredient is Kutaja tvak-Holarrhena antidysenterica) – 1g / three times a day.
    Udumbara kvatha basti (ingredient is Udumbar tvak-Ficus glomerata) daily for one week and then twice a week for the next three weeks.

    This treatment was given for a study period of one month.
    Diet

    Patients were kept on pitta –shamaka, laghu, grahi and pathya food articles.

    I am unsure about what this means from a dietary standpoint but certainly this is far from the SAD (standard American diet)..

    If the patient was taking any modern medicine, doses of these were gradually reduced as the patient responded to Ayurvedic treatments.
    Criteria for assessment

    The improvement in the patients was assessed on the basis of relief in the symptoms and signs of the disease together with laboratory investigations. All the symptoms and signs were given grade scores and assessed before as well as after treatment. Changes in hemoglobin, ESR, and body weight were also recorded before and after treatment. Reductions in the doses of steroid and sulfasalazine drugs were also recorded.

    Criteria would require CBC or other blood tests to determine success rates.

  23. hi dimple
    thnx ….i’m on soft food..i’m better now by the grace of allah.but i do suffer from some mental problem….i’m scared if the flare up comes again?if i maintain my food and medicine will i be able to stay fine.

  24. hi dimple what sort of veggies r safe for uc..as far as i know cabbage,turnip,cauliflower r not good for ucer.what abt carrot.tomato, r the good i mean safe

    1. Hi Zeenat,

      I’m glad you’re feeling better now. Any veggies without seeds is good. Make sure it’s low on fiber. I prefer juicing the veggies & fruits & then filtering it.
      Yes, following your diet plan & holistic supplements, meds will help you stay f9

    2. hey can you please give me advice on UC. I have been suffering from UC for past 6 months.. As it is hampering my study n everything.I am frustrated so i i was looking for someone to discuss on this. can you please forward your email id.. to my email id krish.sharma533@gmail.com
      thanks

  25. thnx dimple u r so kind…..ur answer makes me stronger.but one thing comes in my mind that if diet and meds can help the ucers to stay fine then why do they face flare up again n again…why flare ups re appear.my last experience was so painful……..so painful….

    1. Hi Zinnat,
      How are you friend? I don’t know why the flare-up happens. It’s just the way our body responds to inflammation. Try meditation to keep yourself positive because all disease starts in the mind so try to keep it calm & happy!

  26. hi i am shikha 28 years old suffering from left sided ulcerrative colitis for last 2 years.it is really difficult to manage disease initially i lost 7 kgs weight but manage to recover with help of gluten free diet and homeopathic medicene once but now i am again flaring less bad den previous time but it really tough to deal this time after remission can anyone suggest anything else to get into remission i cnt follow scd diet as it is difficult to manage .i hv not been on steroids for last one year

    1. Hi Shikha,

      Hope you’re feeling better. Try taking turmeric 1/2 spoon with 1/2 glass of water 3-4 times/day. It will help stop the flare-up because turmeric is a natural steroid without any side-effects.

      1. thnx a lot dimpelzz for ur reply .i stay in delhi and fighting wid dis disease everyday like u all.i will surely follow wat u hv advised.i would like to ask u wat type of ulcerative colitis u are suffering from and do you follow any special diet . as of now i am flaring hope to get in remission .really wish we all come out dis ordeal in our life soon.:)

        1. Hi Shikha,
          This disease treats everyone differently. I am doing well (By God’s Grace) after being down for 5 months, bled continously for first 3 months. I lost 15 Kg (89 to 74)
          I managed my colitis by 2.1g x 3 of Balacol(Balsalazide) and VSL3. NO other meds. Then during the course, my symptoms started reducing. By 5th month, there was no bleeding and It is 10 months now. Apart from the eventual feeling of something healing in left side of stomach, I do not have any symptoms. I am back to normal diet. I reduced the dosage of Balacol, without the consultation of GI, from 9 Capsules a day to 6, then to 4, then to 3. Now just take 2 or 1 capsule a day. I mean, I am afraid of the disease. Once I was away and forgot Balacol at home. I took Mesacol(4th Month), my symptoms returned with traces of blood, mucous and pinching pain, and it took good 20 days to subside. Since then, I havent slipped my meds. I dont what good a single capsule of Balacol will do. But I just take it. I have regained 7-8 Kgs and much fitter now. I didnt follow any specific diet. Just experimented.
          May be my story will help you.

  27. everyone talks abt VSL#3 but my doc says it is not scientifically proved that probiotics do any good to uc.anyway may i know it’s price.i’ve searched it in my country bangladesh but not getting.

  28. Pawan Kumar Prajapati

    Hi All ,

    I also suffered with UC for almost 7 Years .

    But my Suggestions for everyone is go with Ayurvedic .
    There are very good medicine in ayurveda . Initially go along with normal treatment . Control your diet 4 sure as incurable disease only control is there to live happy life .
    Slowly everything will go .
    Consult some good ayurveda DR.
    For query contact me on 8588828039.
    I am from Delhi India .
    Email : Mailpawan4@gmail.com

  29. Thank you neelesh for your reply actually i am taking maesacol 1.2 gm 2 times a day as my G.I suggested me so. He dont want me to take steroids and bunch of more medecenes as he is family friend, therefore i don’t take steroids because of deadly side effects and take homeopathic medicenes as well . i am not on completely gluten free diet but yes to a certain limit, homeopathic treatment has helped me to come out of flare once but my symptoms return like anything after 2 months .yes i know dis disease is wicked :) in a manner and differnt for anyone. i hope u continue to do well and be symptom free . I really appreciate ur advice.I really Hope to get symptom free soon. wish luck to everyone fighting with UC . everyone must remember that . GOD MADE NO LOCK WITHOUT KEY WE JUST HAVE TO FIND ONE :)

  30. Hi everyone , I recently diagnosed with uc after 6 years of taking medication of piles, even surgeon planned my surgery for piles. So first I learned don’t rely on one doctor alway take second opinion from specialist and don’t avoid investigation.
    Seccond learning is avoid too much tension anything just believe in “Life goes on” it never stop because u r in tension.
    Now I’m on wyslone 20 mg bd,mesocol 800mg tds,ciplox tz bd ,folvite od. VSL3 bd.
    With this I’m relieved now , however I’m quite confused about my diet plan . Now I’m on rice
    and moong Dal,pomegranate .
    After few day I’m planning to consult senior unani doctor of Hamdard hospital in Delhi .

    I will share all the information and recovery process to you all . Inshallah and I have believe I ll be recovered soon and share some inserting updates about this.
    I’m planning to start a website totally dedicated to UC for patients to get right advice ,proper treatment plan ,diet plan and don’ts in UC.
    Need your wishes.
    Bye . Live positively .
    Fahad

  31. hi fahad i wish for ur speedy recovery.one more thing is that no specific diet plan works for dis disease so u have to discover ur problem food urself but of course milk and its products are a big no for dose with uc.i would sugest that try not to be wasylone dependent.good luck to you.

    1. Thanks Shika for you reply and support. You are absolutely right in diet . Something suit me may not suit other . Yesterday I had threptin biscuit , I had a severe pain in stomach after meftal spas and voveran inj. I got relieved.

  32. hi fahad my suggestion to you is plz dont take any form of pain killers as dey worse the condition of colon and may contribute in formation of more ulcers. i also suffer from migraine sum tymes but avoid painkillers as suggested by my homeopath.. try marie biscuits or glucose biscuits dey suits me. avoid high fatty food during flare.rice is no harm as far i noticed. take care

  33. HI Pernita,
    I am from india, Tamilnadu. Me too suffering from UC from 2009,Dec.
    I would like to share something.
    First we should understand ourself.
    We should be mentally fit.
    We should not give up our confidence.
    we should not get tempt on, the things which is not suitable to our body. No fibre foods. Eat fruits lot.
    We should not think about our disease (UC).
    We Should consider UC also part of body, like legs, hands, eyes etc…
    Do meditation, yoga and concentrate on something which can make us forget about UC.
    Play with your kids, sleep well, dont skip your food and have it on time.
    Pls come out of things, which can create stress to us.
    Give marks to your confidence level, day by day.
    Dont do work, which is creating much physical strain.
    Make your self comfortable, you have to lead little sophisticate life.
    All the best for your future. Nothing to worry. Bless is there for your happy life.
    Futher any info, pls feel free to contact (mahaanrev@gmail.com)

    1. Hi everyone…me too is a sufferer of this terrible disease..I am 39years old a year and a half back had my hysterectomy done and within three months I was detected with left sided UC. Due to this had to resign from job, was completely left drained out had lost my selfconfidence….took one whole year to go into remission..just thought life is coming back to terms and then again had a relapse….currently on asacol 400 three tablets thrice a day. And prednisone which I willbe tampering off soon….diet is bland food rice based….strictly avoiding gluten….please guide me what else can we add to our diet….

  34. hi ritu i m too suffering from left suded colitis from past 3years. Its good if u r on gluten free diet and u can manage it. No specifuc diet wirk for dis disease it is different for everyone.my suggestiin fir u is u can start homeopathic treatment along wid ur allopathic treatment ut will di no harm and will naturally correct ur immune system which is a main culprit fir dus disease.one more thing is try to deviate mind frm dus disease and move on wid normal life as this is stress related problem too.plz rejoin ur job if possible as dis disease want to control u but dnt let it win over u. One more thing is u can aviid dairy an milk which also contribute to flare. Gd luck an be blessed. Biee

  35. i was a patient of uc. I suffered for almost 6 years. I took all the medicine that u are taking now like wysolone , mesacol od , colorex etc. but these only alleviate my problem but did not cure it. As allopathy works on symptoms , it does not work on the root cause of this disease. as per my research it is a disease of excessive heat in the colon. So i took bael(aegle marmelos) sharbat and liv. 52 ds tablet. liv. 52 works on the root cause that is heat or toxins in the body. In beginning liv. 52 ds tablet causes some discomfort like cramps and diarrhea but it should be continued as it can cure your uc. As it has cured mine. u must start doing jogging, walk or any other activity bcoz these exercises help liver in getting rid of toxins and heat in your body.
    dosage of liv. 52 ds tablet
    2-2 tablets morning and evening after food. or can be taken with water when u experince cramps. it will take time but will undoubtedly cure uc. please follow this suggestion.

    person who have taken steroids may develop cramps. bael sharbat must be consumed to repair your colon.

    please comment if anybody gets relief from this.

    1. Hi Rahul, hope u are doing well and no more UC flares please advise me on your medication does this liv. 52 still helping u , no where i find it is recommendation for UC people what is your experience

  36. Hi All,

    I am writing in after a long time. In the past few months I have been through a few minor and 2 major flares. However, for the last 3 weeks I have been in a very bad shape indeed. My stomach has been bloating and I am completely stressed out. It does not help that my husband has been behaving like a consummate asshole as always. I can related to other people who say their spouses do not treat them well when they fall ill. The main reason for my condition has been a stressful married life for the last 24+ years. It may be of no surprise to you all that how much stress aggravates this condition. Single handedly I have run my life and reached where I am today, with support of my parents and children. Have taken care of everyone in the family when they are unwell. But when I am unwell there is no one except my kids to look after me. Stupid ranting from a grown up woman. But problem with this disease is that outwardly you look fine to the world, but the fatigue due to poor absorption of nutrition is not a measurable symptom. I do Leadership and Transformational Coachings as a corporate head. But believe me, life is extremely tough during a flare. The psychological impact of this family of diseases is immense.

    Good luck to all of you. Apologies for the long vent.

    SM

  37. Hi all , really sorry to hear ur story SM i pray for u an everyone suffering from dis disease as this disease is alsi a major set back of my life i was 25and full of life till i was diagnosed wid dis disease i had many flare ups having left sided uc.i am 28 now an my parents want me to get married asap but i m scared coz of my uc. Any inputs in dis will be appreciated . I think it is hard to find smone who undesrtand my problem which superficially seems ok. I am confident and independent girl but scared to add smone stranger to my life . What should i do??.as of no.w. i am flaring , on mesacol and homeopathic medecenes

  38. Hello

    I have UC from past 1 and 1/2 years. I have relapsed no of times in this time period. This time i relapsed after having wine & falooda the very next day. I am taking 3 mesacol 1.2 OD tablets & 1 suppository in the morning(also on homeopathy medicines on & off). So this time i had reached 4-5 BM’s every day & i knew my doctor would put me on steriod enema to control it. Some had suggested Bael fruit here & i did some research & took bael leaves powder & it reduced my BM’s from 4-5 to 2-3. I am also taking home made bael fruit juice & this helped in taking down my BM’s to 1-2. This is the first time i am able to control my motions without steriods enema. I am very happy that i have found this bael fruit & powder solution for my problem. This can lead to bloating & is not recommended for pregnant women. I am taking it alternate days. I am also taking pomegranate juice on alternate days. Last relapse lasted for 3-4 months & i lost lot of wight because of it. This time within 15 days i have controlled it.
    Regarding people facing marriage issue, i would suggest u let the person know that you have this problem & you are in control of it . If the person accepts then good or else move on.
    If you are eating outside food then you should avoid food where contamination is more like chutny, cold food, road side, dairy products like falooda which i had. Eat from the good place if you feel like eating. Also take alternate medicines because there is no cure in allopathy. It can just manage it.
    Dont worry about UC,know your body, be calm & enjoy your life.
    Take care!!!!

  39. Hi All, I am doing better. Grace. Grateful to God.

    I am Prednisolone 25 mg (of course with taper).

    As usual I am continuing with this Ayurvedic Remedy.

    One glass of water with two spoons of Bael Fruit Powder and one spoon of Mulethi Powder. Mix it well, keep it aside for 5 minutes and then sieve it with a strainer. Have it every morning empty stomach.

    Please contact me on 09712190687. I would like to share information and some warming chat.

    Best wishes and prayers.
    Sarve Bhavantu Sukhinah.

    Ashish

  40. Hi everyone,
    I hope everyone is doing fantastic. I thank people here to give me right suggestions as and when required now i m more confident about my disease and no more depressed on why dis happened to me.I have also decided to face marriage issue more confidently now. I would like to ask Mr. ashish patel that from where do u purchase bael powder as i dont know any shop here in delhi .currently i m having bael juice as suggested by many people here which is indeed a great help to control my symptoms. Currently i m not on steroids and dont wish to start them anytime in future. Take care everyone …..Live a positive life

  41. I have been diagonised with UC just 7days back. I am at steroids now. I lost 5 kg weight. Feel very week and low. Please help.

  42. Hi ritu hope u r feeling better now. I dont know about bael powder but u can make bael sharbat at home very well. i am also from delhi and make it in my home itself. u can purchase bael fruit in dis season from sabji mandis anywhere it is very easily available. u just take out pulp from fruit mash it smoothely and then add water in it ,make it little bit thick not totaly watery and then seive it in atta channi(seiver). add some sugar if required drink it empty stomach in morning. u will notice formation of stool becoming better and constipation will releive too. dont loose hope . i want to ask u from where in delhi u r taking treatment if u want to tell. Stay positive and active take care.

  43. Hi alok,
    I am also suffere of ulcerative colitis for last 4 years . Dont loose hope and try to accept this disease. Try to avoid things with gluten in it that is : maida and wheat . . Avoid milk and milk products,fried foods as dey contribute to flare majorly. Add rice and its products to ur diet dey will do no harm and stool formation will improve. Tke bael sharbat to ur diet in summers it is natural anti-inflammatory .One suggestion is start homeopathic treatment along with ur allopathic medecenes initially as it will help u to get rid of steroids which has deadly side effects in the long run. Stay healthy and stay positive take care

  44. Thanks Shikha…am soon shifting my base to Delhi that’s the reason I inquired. When in Delhi once had shown to a Gastro in Medanta…his name is Dr. Navneet Ahluwalia, a good doctor but has left Medanta now. regarding homeopathy if u know someone good then pls suggest the name. I too want to get rid of these medicines they r taking a toll on my health bcoz of their severe side effects. I have basically left wheat gluten from last one year..rice is working fine with me till now. but I recommend coconut water once a day preferably early morning empty stomach, it too keeps ur stomach cool….will definately try bael sharbat once in India. I try to keep my self calm but at times this disease keeps showing its horror side….hope the medical science finds a permanent cure for us all (sufferers) soon….

  45. Hi ritu ,
    Its good if u are on gluten free diet as it works best with homeopathy. If u wish to continue with homeopathy i would suggest you Dr. amar homeo healers in delhi . U can check out details on their official website . I am reffering to dr.amar he is amazing doctor though i am also continuing wid my allopathic medecenes but by god’s grace i am not on steroids. I am taking mesacol 1.2 gm twice a day along with my allopathic medicenes and eating almost everything excluding green leafy vegetables, milk and deep fried things. yes i am avoiding maida to some extent but can eat roti once a day. This is all possible due to his homeopathy coz dere was a tym when my hemoglobin was falling continously. Homeopathy if started along homeopathy can help u control ur disease if not cure. It can correct immune system naturally which is main culprit of dis disease. As far as i m concerned i would suggest u not to have coconut water as long as u think it suit u completely as it is amyth that it is a coolant coz i know it can form acidity if taken empty somach. I wish someday i can leave allopathic completely. Yaar dont loose hope coz everyone has their set of problems trust me optimism will help u a lot as it has helped mine. i was very pessimistic once which only worsen my condition. I have been to major hospitals of delhi,2 colonoscopies including AIIMS but every doctor answers same that it is lyf long problem. u do consider homeopathy when u visit delhi i will help u if u need. Take care .STAY HEALTHY…. CHEER UP …GOD MADE NO LOCK WIDOUT ITS KEY…OM SAI RAM

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