61 (soon to be 62) year old white female diagnosed with UC in 2009. Currently live in Florida and had lived a very normal lifestyle but now am placing many restrictions on myself.
Frequent urgency to move bowels
Blood (and clotting…is that normal?)
While being diagnosed in 2009 have always had success with meds to put this awful disease back in remission, i.e., Rowasa, Prednisone. Unfortunately not working this time. Gastro doctor informed me that time choices were removal of colon or to start through a Remicade treatment plan. Remicade, obviously, is what I chose…only been 2 days with no result. My family is very supportive. I would never even consider colon removal without more dr. opinions. UC has definitely changed my life because now I feel that the safest place is within the confines of my own home. I am very concerned about getting on an airplane on Monday to go up for the baby shower for my first grandchild. Trying to think positive. I have many questions for other people afflicted with UC. Did Remicade work for you? After how many treatments? If not Remicade what did work? How quickly did it work for you? What did you do when you needed to board an airplane or leave the comfort zone of your own home? What about food? I’m almost afraid to eat most things or things in general because if I’m out and have an attack, not sure how close I will be to facilities. Have also been feeling very exhausted probably because of the loss of blood and not sure what supplement might be good to take….any suggestions? Plan to discuss this with my doctor but next scheduled appointment is not until the end of August. Has anyone resorted to removal of the colon because all else has failed? Not sure what all this involves and am almost afraid to research on the internet because sometimes too much information is not such a good thing but a friend did say she has a friend who had hers removed and lives a very normal life.
Where I’d like to be in a year:
In one year I’d like to be living a normal lifestyle and enjoying my first grandchild which is due on 10/11/12.
Rowasa and Prednisone have worked in the past but not this time!
written by Florida Karen
submitted in the colitis venting area